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Links to Other Websites

Links to Other Websites

Baby's First Test
Baby's First Test provides information about newborn screening at the local, state, and national level and serves as the clearinghouse for newborn screening information. This website from Genetic Alliance is dedicated to educating parents, health professionals and the public about the newborn screening system.


Discretionary Advisory Committee on Heritable Disorders in Newborns and Children
The Advisory Committee on Heritable Disorders in Newborns and Children advises the Secretary of Health and Human Services regarding the most appropriate application of universal newborn screening tests, technologies, policies, guidelines and standards for effectively reducing morbidity and mortality in newborns and children having, or at risk for, heritable disorders.


Genetic Alliance Collection of Newborn Screening Videos
As part of the Consumer Focused Newborn Screening projects, Genetic Alliance created a playlist that showcases a selection of introductory newborn screening videos from various individuals and stakeholder organizations.


March of Dimes' News Moms Need Blog: The importance of newborn screening
Read information for parents about the importance of newborn screening.


National Newborn Screening and Global Resource Center
Information and resources on newborn screening and genetics for health professionals, the public health community, and consumers.


Newborn Screening
Information about newborn screening from the March of Dimes.


Newborn Screening Translational Research Network (NBSTRN)
Information on newborn screening-related resources, education, and services for health professionals, the public health community, and consumers.


Public Health Grand Rounds on Newborn Screening: Improving Outcomes
The Public Health Grand Rounds is a monthly webcast created to foster discussion on major public health issues. Related Article: Morbidity and Mortality Weekly Report on CDC Grand Rounds: Newborn Screening and Improved Outcomes


 

Save Babies Through Screening Foundation
This site educates parents, pediatric healthcare providers, and policy makers about available comprehensive newborn screening.


The Parent's Guide to Newborn Screening: These Tests Can Save Your Baby's Life
Information for parents about newborn screening from the Health Resources and Services Administration (HRSA).

 

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