Free Materials

A component of the National Hemophilia Foundation’s (NHF’s) Steps for Living Program, funded in part by the Centers for Disease Control and Prevention, is Guidelines for Growing, a series of age-specific brochures (targeting ages 0-4, 5-8, 9-12, 13-15, and 16-18) adapted from the NHF’s Medical and Scientific Advisory Council (MASAC). Each brochure focuses on social and developmental milestones specific to the general age range of a child or young person with a bleeding disorder. This resource is designed to be used in conjunction with the HTC provider team to guide the parent or young person through transitional periods.

Guidelines for Growing Ages birth to 4 [PDF - 10.1 Mb]
Guidelines for Growing Ages 5 - 8 [PDF - 12.8 Mb]
Guidelines for Growing Ages 9-12 [PDF - 5.9 Mb]
Guidelines for Growing Ages 13-15 [PDF - 12 Mb]
Guidelines for Growing Ages 16-18 [PDF - 5.2 Mb]

National Hemophilia Foundation  
The National Hemophilia Foundation is funded by the CDC to provide information and educational materials on hemophilia for families and health care providers. They have developed several fact sheets, guides, and brochures.

National Hemophilia Foundation Information Resource Center (HANDI)

Treatment Center Brochure
This brochure is intended for people with hemophilia and other bleeding disorders to learn about hemophilia treatment centers and the type of care they offer.

The Universal Data Collection System Fact Sheet
[ English | Spanish ]
This document provides information about recent research findings, current research projects, and future directions of the UDC System.