Skip directly to search Skip directly to A to Z list Skip directly to navigation Skip directly to page options Skip directly to site content

Public Health Research, Epidemiology, and Surveillance for Hemoglobinopathies (PHRESH)

	PHRESH logo

To expand and learn more about the information collected during the RuSH project, the CDC started a new hemoglobinopathies project. This project, Public Health Research and Surveillance for Hemoglobinopathies (PHRESH), focused on two areas: surveillance (monitoring) and health promotion and prevention of health complications. The project was a collaborative effort with California, Mississippi, and Georgia from 2012-2014.

The primary goals and objectives of PHRESH were:

  • To develop a monitoring program within a defined geographic area that provides accurate information on the burden of disease (how the disease impacts individuals and communities)
  • To carry out activities that promote health and prevent health complications by improving the quality of care for people with hemoglobinopathies (particularly focusing on vaccines/shots), early and continuous screening (especially transcranial Doppler screening), and the use of appropriate treatments
	Group of adults posing for a picture

The information gained from PHRESH serves as a model for national and international agencies to address the developing needs of people living with hemoglobinopathies.

As a result of RuSH and PHRESH, we have:

  • Learned roughly the number of people living with hemoglobinopathies in the 8 participating states and better understand their use of health services;
  • Increased access to health education materials for people living with hemoglobinopathies,  their families, and health care providers;
  • Increased awareness about ways to reduce  health problems due to hemoglobinopathies;
  • Developed hemoglobinopathy monitoring processes including the methods for collecting information which will make it easier to conduct this project on a larger scale in the future.
Top