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Public Health Research, Epidemiology, and Surveillance for Hemoglobinopathies (PHRESH)

PHRESH logoTo expand and learn more about the information collected during the RuSH project, the CDC has started a new hemoglobinopathies project. PHRESH focuses on three areas: surveillance (monitoring), health promotion and prevention of health complications, and laboratory capacity building. The project has launched in California, Mississippi, and Georgia, and will address several objectives of the “Healthy People 2020 (HP2020), Blood Disorders and Blood Safety” initiative, including:

  • Increasing the number of people with hemoglobinopathies who receive:
    • recommended vaccinations (shots)
    • early and continuous screening for health problems related to their condition
    • appropriate treatment

 Group of adults posing for a pictureTo address HP2020, the primary goals and objectives of PHRESH are:

  • To develop a monitoring program within a defined geographic area that provides accurate information on the burden of disease (how the disease impacts individuals and communities)
  • To carry out activities that promote health and prevent health complications by improving the quality of care for people with hemoglobinopathies (particularly focusing on vaccines/shots), early and continuous screening, and the use of appropriate treatments
  • To develop a way for state and/or regional laboratories to improve accuracy of hemoglobinopathy testing for all hemoglobinopathies.

The information gained from PHRESH will serve as a model for national and international agencies to address the developing needs of people living with hemoglobinopathies.

As a result of PHRESH, we will have:

  • Learned roughly the number of people living with hemoglobinopathies in the 3 participating states and better understand their use of health services;
  • Increased access to health education materials for people living with hemoglobinopathies,  their families, and health care providers;
  • Increased awareness about ways to reduce  health problems due to hemoglobinopathies;
  • Increased use of methods to prevent health problems due to hemoglobinopathies;
  • Improved the ability of laboratories to test and identify people with hemoglobinopathies;

Developed hemoglobinopathy monitoring processes including the methods for collecting information which will make it easier to conduct this project on a larger scale in the future.

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