Training & Education - Resources

Downloadable Resources

Resources developed by the CDC to assist primary care providers inform hemochromatosis patients and their families include:

• Phlebotomy information for patients with hemochromatosis (PDF–61K)
• Diet information for patients with hemochromatosis (PDF–59K)
• Talking with your family members about hemochromatosis (PDF–57K)
• Letter for patients to give to their immediate family members explaining family-based detection (PDF–53K)
• CDC Brochure "Iron Overload and Hemochromatosis: Information for patients and their families" (PDF–2.7Mb)
• CDC Hemochromatosis Website includes downloadable patient brochure and hemochromatosis information.
• Print-friendly, 508-compliant version of the entire Hemochromatosis for Health Care Professionals course (PDF–1Mb)

The online resources below are available to assist the primary care professional diagnose and treat patients who have iron overload, hemochromatosis, and hereditary hemochromatosis.

 

Phlebotomy Information

• Iron Disorders Institute*
• NIH News Release: Study Finds Hemochromatosis Patients' Blood is as Safe as Other Donated Blood: May Help Alleviate Blood Shortage
• The American Red Cross: Learn more about blood donation opportunities*
• The American Association of Blood Banks: Where to Donate and Receive Blood*

 

Dietary Supplements

• NIH – Facts about dietary supplements

 

Genetics

• CDC Genetics and Disease Prevention Information — resources on genetics, including journals, reports, and fact sheets. Includes online multimedia presentations ranging from basic genetics to latest research.
• NIH — Frequently Asked Questions About Genetics
• NIH — Glossary of Genetics Terms
• University of Washington Genome Center — Glossary of Basic Genetic Terms*
• National Society of Genetic Counselors, Inc. ResourceLink at NSGC* has been developed to assist consumers in locating genetic counseling services and for students curious about the profession. Genetic Counselors can be searched by State, City, Counselor's Name, Institution or Areas of Practice or Specialization.
• Continuing Medical Education in Genetics — includes Core Educational Guidelines in Medical Genetics for family practice residents from the American Academy of Family Physicians.

 

Iron and Hemochromatosis

• CDC — Hemochromatosis Web page — includes downloadable patient brochure and frequently asked questions and answers.
• CDC anemia and iron status Web page — includes a pdf version of Recommendations to Prevent and Control Iron Deficiency in the United States.
• Iron Disorders Institute* (IDI) — a national voluntary health agency that provides patient services, books, and literature about hemochromatosis and other disorders of iron such as non-HFE related iron overload, iron loading anemia, anemia of chronic disease, and iron deficiency anemia.
• American College of Physicians/American Society of Internal Medicine, Annals of Internal Medicine Supplement — Iron Overload, Public Health and Genetics.*
• MEDLINEPLUS — a service of the National Library of Medicine provides links on iron overload and hemochromatosis including a link for ongoing hemochromatosis clinical trials.

 

Journals

• Patient Education Handout — a handout for patients titled "Low serum ferritin level rules out advanced liver disease in hemochromatosis."* This summary is published in Ann Intern Med. 2003 April 15; 138(8): I1.
• PubMed — a service of the National Library of Medicine provides access to more than 12 million MEDLINE citations from the mid-1960s forward, and other life science journals. To create your own reference search using PubMed/MEDLINE, visit http://www.ncbi.nlm.nih.gov/entrez/query.fcgi

 

Faculty

• Hemochromatosis experts at the Centers for Disease Control and Prevention and medical experts throughout the United States developed this course to promote early detection and early intervention of adult onset hemochromatosis. List of Faculty.