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FRAXA Research Foundation
FRAXA is a grass roots nonprofit founded and run by fragile X families. Their mission is to accelerate progress toward effective treatments and ultimately a cure for fragile X, by directly funding the most promising research. FRAXA also supports families affected by fragile X.

National Fragile X Foundation
The Foundation enriches lives through educational and emotional support, promotes awareness and advances research towards improved treatments and a cure for fragile X.

National Institute of Child Health & Human Development
The Institute conducts and supports research on all stages of human development, from preconception to adulthood, to better understand the health of children, adults, families, and communities.

National Institutes of Health, Office of Rare Diseases Research, Genetic and Rare Diseases Information Center
The Office of Rare Diseases Research (ORDR) answers questions about rare diseases for patients, families, healthcare providers, researchers, students and educators. The ORDR website provides information about National Institutes of Health-sponsored biomedical research, scientific conferences, and rare and genetic diseases.


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  • Centers for Disease Control and Prevention

    National Center on Birth Defects and Developmental Disabilities

    Division of Human Development and Disability

    1600 Clifton Road
    MS E-88
    Atlanta, GA 30333
  • 800-CDC-INFO
    TTY: (888) 232-6348
  • Contact CDC-INFO The U.S. Government's Official Web PortalDepartment of Health and Human Services
Centers for Disease Control and Prevention   1600 Clifton Rd. Atlanta, GA 30333, USA
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