Feature Quiz: Hemophilia - Alt Text Version
Question 1: Can you name 3 or more complications of hemophilia?
Answer: Hemophilia can result in:
- Joint swelling that can lead to damage or swelling in the muscle
- Bleeding in the head and sometimes in the brain leading to brain damage
- Damage to other organs in the body
- Pain as a result of bleeding in various organs
- Death can occur if the bleeding cannot be stopped or if it occurs in a vital organ such as the brain
Question 2: Can a person be born with hemophilia if his parents don’t have the disorder?
About one-third of babies who are diagnosed with hemophilia have no other family members with the disorder.
Question 3: Name 5 things people with hemophilia can do to stay healthy.
- Get an annual comprehensive checkup at a hemophilia treatment center.
- Get vaccinated—Hepatitis A and B are preventable.
- Treat bleeds early and adequately.
- Exercise and maintain a healthy weight to protect your joints.
- Get tested regularly for blood-borne infections.
Question 4: How can joint damage in a person with hemophilia be lessened?
Answer: Preventative treatment (prophylaxis).
A CDC-sponsored randomized clinical trial found that children who were treated on a regular basis to prevent bleeding had less evidence of joint damage by 6 years of age than did those who were treated only after a bleed had started.
Question 5: Can females have symptoms of hemophilia?
Females can be hemophilia carriers. A female who inherits one affected X chromosome becomes a “carrier” of hemophilia. A female who is a carrier can sometimes have symptoms of hemophilia. In addition, she can pass the affected gene on to her children.
Extra Credit: What is an inhibitor?
Answer: About 10 – 15 percent of people with hemophilia develop an antibody (called an inhibitor) that inhibits the action of the clotting factors used to treat bleeding. Treatment of bleeding becomes extremely difficult, and the cost of their care can skyrocket because more clotting factor or a different type of clotting factor is needed. Patients with inhibitors often experience increased joint disease and other complications from bleeding that result in a reduced quality of life