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| Fetal Alcohol Spectrum Disorders |
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Fetal Alcohol Spectrum Disorders |
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Partner Spotlight and Their Collaboration
with CDC

Oklahoma City, Oklahoma
Organization Overview
The University of Oklahoma Health Sciences Center (OUHSC)
is a collaboration of seven health-related colleges in the Oklahoma City
and Tulsa metropolitan areas. Through the “A Better Chance” (ABC) program
at OUHSC, comprehensive services for evaluation, diagnosis, referral,
treatment, and case management of children and families at high risk for
problems due to prenatal exposure to drugs, alcohol, or other toxic
substances are provided. OUHSC collaborates closely with the Indian Health
Service to provide needed services for the state’s large Native American
population. Established in 1995 through the Department of Pediatrics at
OUHSC, the ABC program is funded through the Department of Mental Health
and Substance Abuse Services with specialized research programs for fetal
alcohol syndrome supported by the CDC.
OUHSC’s Collaboration with CDC
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In 2001 OUHSC was awarded one of five cooperative
agreements for a four-year project to identify, develop, and evaluate
effective strategies for intervening with children with FAS/ARND and their
families. Through these interventions, researchers are trying to help
children with fetal alcohol syndrome (FAS) or alcohol-related
neurodevelopmental disorder (ARND) to improve developmental outcomes,
prevent secondary conditions, and provide education and support to
caregivers and families, thus reducing the risk of life-long consequences.
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The OUHSC project is a randomized controlled trial of
two interventions. Following a comprehensive evaluation through the ABC
program and clinical genetics, all families participate in extensive
education on FAS/ARND and the implications of their children having these
disorders. They are then randomly assigned to an intervention group. One
intervention uses the evidence-based practice called Parent-Child
Interaction Therapy (PCIT) to intervene with parents and their children
(aged 3 through 7 years) who have been diagnosed with FAS/ARND and exhibit
significant problem behaviors. Children and parents participate in 14
weekly group sessions lasting 1.5 hours each. Specially trained therapists
conduct these group sessions teaching appropriate and effective skills to
improve the parent-child relationship, improve social behaviors, and
provide parents with an effective positive discipline program. Parent-child
interactions are observed, and guidance and individualized coaching of
skills are provided. Comparison children and families participate in a
parent-only support and management group for the 14 sessions. Group
comparisons at the conclusion of the intervention and at 6-, 12-, and
18-month follow-ups will be used to measure the effectiveness of this
treatment.
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The project has three goals:
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Reduce behavioral problems common in young children
with FAS/ARND (poor social skills, low frustration tolerance, poor
compliance, impulsivity, stressful parent-child relationships, behavior
problems in school or child care settings).
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Increase parental knowledge about FAS/ARND.
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Increase advocacy skills in parents of these children.
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Results and findings from this project are expected to
be available in late 2005.
For more information about OUHSC, please visit their
website at www.ouhsc.edu
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Date: May 2, 2006
Content source: National Center on Birth Defects and Developmental
Disabilities
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