FASSNet Case
Definition
The FASSNet case
definition for fetal alcohol syndrome (FAS) includes three components:
-
Face:
Abnormal facial features consistent with FAS or two or more of the following:
short palpebral fissures, abnormal philtrum, thin upper lip.
-
CNS: At least
one structural (birth or postnatal head circumference <=10th
percentile) or functional (e.g., mental retardation, developmental
delay) central nervous system
anomaly.
-
Growth:
Intrauterine or postnatal growth delay (e.g., weight for age <=10th
percentile, length corrected for gestational age <=10th percentile)
Children who meet all
three components of the case definition are considered to have a confirmed
FAS phenotype.
Children who meet the
face component and either the CNS or the growth component are considered to
have a probable FAS phenotype.
Confirmed and probable
cases are further categorized as to whether documentation exists in the
child's and/or mother's record of some level of maternal alcohol use
during the pregnancy.
For more information
about the FASSNet case definition, please contact Karen Hymbaugh at (770)
488-7373 or kxh5@cdc.gov.
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Data
Items Collected
The standard set of
data items collected in FASSNet includes information on both the child and parents.
Child information
includes, for example, race/ethnicity, date of birth,
gestational age, birth and postnatal growth measurements, central nervous
system
exam results, alcohol-related diagnoses, dysmorphology descriptions and
measurements, and other birth defects.
Information collected
on the biological parents includes, for example, race/ethnicity,
maternal alcohol use during index pregnancy or at any other time,
prenatal care, education, and other children.
For more information on
the specific data items collected by the FASSNet projects, contact Karen
Hymbaugh at (770) 488-7373 or kxh5@cdc.gov.
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