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To help increase education, awareness, and research about Diamond Blackfan anemia (DBA), we partner with many organizations, professionals, and other individuals in these efforts.

DBA Newsletter

The Daniella Maria Arturi Foundation (DMAF) and the Diamond Blackfan Anemia Foundation (DBAF) each sponsor DBA newsletters. Visit their websites to download current issues or register to receive news and updates.

DBA Newsletter 2010

DBA Newsletter Spring 2011

Free Materials

View and print free educational materials, including a brochure, fact sheets on treatments, and a medical care notebook.

Conferences

The 2nd National Conference on Blood Disorders in Public Health
March 12-14, 2012 in Atlanta, Georgia
The Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention; the Maternal and Child Health Bureau, Health Resources and Services Administration; the Division of Blood Diseases and Resources, National Heart, Lung, and Blood Institute and the Office of Rare Diseases Research, National Institutes of Health; the American Society of Hematology; and Hemophilia of Georgia are pleased to announce the 2nd National Conference on Blood Disorders in Public Health.

The purpose of this conference is to further advance the public health context described during the 1st National Conference on Blood Disorders in Public Health (March 2010) and to promote the adoption and full integration of evidenced-based and evidenced-informed public health functions that are capable of promoting the health of and improving outcomes among people with a blood disorder. For more information please go to www.blooddisordersconferences.com.

Annual International Consensus Conference
The DBA Annual International Consensus Conference provides interaction with the international scientific and physician community from around the globe in order to improve patient care. Coordination of the international experts in this field has resulted in a Clinical Care Consensus Document offering the latest opinions on how to diagnose and manage the care of patients with DBA. Please visit http://www.dmaf.org/ for more information about the conference.

53rd annual meeting and exposition of the American Society of Hematology
December 10-13, 2012 in San Diego, CA

The American Society of Hematology (ASH) will host its 53rd annual meeting in San Diego, where it will offer numerous sessions covering hematology and other important health topics. For more information visit: www.hematology.org/Meetings/Annual Meeting/.

The 25th Annual Meeting of the American Society of Pediatric Hematology/Oncology
May 9-12, 2012 in New Orleans, LA

The most comprehensive and focused educational opportunity for pediatric hematologists/oncologists, the ASPHO 25th Annual Meeting provides a unique opportunity to network and collaborate with fellow subspecialists in pediatric hematology/oncology. For more information visit: http://www.aspho.org/education/content/meeting.html.

External Partners Group at the National Center on Birth Defects and Developmental Disabilities

The External Partners Group is a coalition of government and private sector organizations who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities. If you would like to become a partner and receive the newsletter, email updates, and other information, please visit the External Partners Group website.

 

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