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Foundations and Organizations

Daniella Maria Arturi Foundation (DMAF)

Provides financial support for the research of DBA, increases awareness of DBA among medical professionals and federal policy makers, and coordinates and sponsors annual DBA Scientific and Clinical Meetings. DMAF sponsors a comprehensive "DMA 4 DBA" annual newsletter as well as online news and e-blasts updating the DBA community about the latest in DBA news. Visit to download current issues of the DMA 4 DBA newsletter and “subscribe” to be sure you receive all DBA news, events and updates.

Diamond Blackfan Anemia Foundation (DBAF)

Dedicated to providing support for DBA patients, families, and research. In partnership with DBA families, the DBAF funds worldwide research projects, provides educational materials and emotional support to families, networks DBA families, sponsors DBA family meetings including Camp Sunshine retreats (, and publishes the comprehensive biannual DBA Newsletter and an informative monthly e-newsletter. DBAF is committed to educating, empowering, and supporting DBA patients and their families. For additional information and to register with the DBAF, please call: 716-674-2818 or visit

Diamond Blackfan Anemia and You

Dedicated to helping educate people about this rare blood disorder and topics that are often associated with not only individuals with DBA, but their friends and families as well.