Free Materials

DBA Fact Sheet
This fact sheet provides an overview of DBA.

Managing Your DBA Care: A Notebook for Families

Growth Charts
Growth Chart for Girls - Birth to 36 Months
Growth Chart for Girls - 2 to 20 Years
Growth Chart for Boys - Birth to 36 Months
Growth Chart for Boys - 2 to 20 Years

Medication Log Sheet
Laboratory Testing
Transfusion Log Sheet
Vaccination Log
Notes Pages
Binder Cover

Fact Sheets

Blood Transfusion Therapy
This fact sheet provides information about a type of treatment called blood transfusion therapy, including the benefits and risks.

Chelation Therapy
This fact sheet provides information about chelation therapy, including types of medication and side effects.

Congenital Anomalies
This fact sheet provides information about congenital anomalies in Diamond Blackfan anemia.

Corticosteroid Therapy
This fact sheet provides information about a type of treatment called corticosteroid therapy, including side effects and tips for success.

Diamond Blackfan Anemia, Genetics, and You
This fact sheet provides information about the genetics of DBA, implications for family planning, genetic testing, and resources that might be helpful in understanding genetics.

For Parents of Children With Diamond Blackfan Anemia (DBA)
This fact sheet provides information to parents about talking with their children about DBA and available resources.

Resource Fact Sheet
This fact sheet provides information about available resources for people with Diamond Blackfan anemia (DBA) and their families.

Stem Cell (Bone Marrow) Transplant
This fact sheet provides information about a type of treatment called stem cell transplant, including the risks and benefits.

Types of Doctors and Providers
This fact sheet provides information about the different types of doctors and other providers that a person with DBA might need.