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Fiscal Year 2012: Proposed Budget Consolidation

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A summary of the budget request, as well as the full CDC and ATSDR Congressional Justifications can be accessed in the following:

To view the NCBDDD budget information, go to page 147 in the following document:

While the initial fiscal year (FY) 2012 budget request for CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD) was flat funded at $143.9 million, we anticipate that the final FY 2011 budget for NCBDDD - $136,072 million will represent the starting point for FY 2012 budget discussions moving forward.

A significant change from previous years is that the FY 2012 request consolidates more than 20 condition-specific budget lines into three broader budget lines:

  1. Child Health and Development
    1. Autism
  2. Health and Development for People with Disabilities
  3. Public Health Approach to Blood Disorders

The three broad budget lines represent new comprehensive programs that refocus activities to integrated and competitive grant programs to facilitate more effective approaches. Consolidation will provide NCBDDD greater flexibility to address critical public health challenges and allocate resources to maximize the public health impact. NCBDDD, working with external stakeholders, may:

  • Continue some existing programs as currently structured
  • Expand programs
  • Redirect resources to more effective activities
  • Change the scope of existing activities based on effectiveness and need
  • Use existing program resources to start new activities or end existing programs, if appropriate

Rationale for Budget Consolidation

NCBDDD’s commitment to healthy infants and children starts before conception with the health of the mother. Research demonstrates that the health of the mother plays a critical role in a child’s ability to be born healthy and to grow up healthy and ready to learn. Good nutrition, healthy women and healthy pregnancies, safe and nurturing parental relationships and early interventions all have a positive impact on an infant and child’s health and development. The proposed budget consolidation of the Birth Defects and Developmental Disabilities budget line will unify NCBDDD’s ongoing efforts to promote preconception health, support surveillance and research on risk factors for birth defects and developmental disabilities and other poor developmental outcomes and promote early identification and intervention efforts for children with developmental delays and disabilities.

NCBDDD promotes optimal health and development for all children, with a special emphasis on at-risk children and overall health for people with disabilities across the lifecourse. It addresses activities to improve quality of life and life expectancy of people of all ages with disabilities, and to eliminate health disparities among children, youth and adults with disabilities. The proposed budget consolidation of the Human Development and Disability budget line will allow a more flexible program for funding and managing activities in the Health and Human Development with Disabilities Program. Building upon the successful collaboration NCBDDD has with state and local health departments, national and community organizations, universities, and other partners, NCBDDD plans to expand the scope of the program to reach a larger segment nationally and internationally of people of all ages living with disabilities. The broader approach will focus most immediately on the areas of greatest burden and unmet need.

The renewed proposal to consolidate the Blood Disorders budget line will broaden the work already being done through NCBDDD’s successful collaborations with a NCBDDD -funded national network of 135 hemophilia treatment centers (HTCs), national and community organizations, universities and other partners by providing flexibility to expand activities to include all non-malignant blood disorders with an immediate focus on disorders with the greatest burden and unmet need: deep vein thrombosis/pulmonary embolism, sickle cell disease, and von Willebrand disease. This broad public health approach to blood disorders will extend NCBDDD’s reach from approximately 20,000 people seen at HTCs to other patients with bleeding disorders currently treated outside the HTCs and the roughly four million people with one of the targeted blood disorders.

This consolidated budget will provide NCBDDD with the flexibility to prioritize programs that have the potential to maximize impact on the public’s health. This approach will also afford CDC the flexibility to aggressively track birth defects and developmental disabilities, expand its effort to improve the lives of people with disabilities by focusing on the most critical public health threats to these populations and expand the scope of NCBDDD’s efforts to mitigate the unnecessary morbidity and mortality associated with the most common blood disorders in the United States. NCBDDD anticipates that this consolidation would provide CDC the flexibility to target scarce resources to the most critical public health challenges facing these constituent populations. NCBDDD projects a 3-year timeline (FY2012-2015) for full transition to and implementation of a consolidated budget. This timeline reflects NCBDDD’s commitment to: engaging partners in managing this transition process; fulfilling NCBDDD’s current funding obligations to existing grantees; adhering to NCBDDD’s existing legislative mandates; informing this transition process through strategic planning and priority setting efforts; and developing a revised set of performance measures that reflects this consolidated budget proposal.

Partner Engagement and Implementing the Proposed NCBDDD Budget Consolidation Plan

NCBDDD developed a three-pronged approach to partner engagement that was designed to maximize the opportunities for partners to offer input into the execution of this budget consolidation plan.

Phase 1: Partner and Grantee Briefings - Phase 2: Partner and Congressional Staff Meetings - Phase 3: Partner Listening Session

Phase 1: Partner and Grantee Briefings (February 14-28, 2011)

Phase 1 of this process was initiated immediately after President Obama released the FY 2012 budget proposal on February 14. During the two-week period following the budget release, NCBDDD policy and program staff conducted a series of briefings for NGO partners as well as grantees including: 1 NCBDDD staff briefing; 10 partner and grantee tele-briefings; and 15-20 individual partner briefings. During these briefings, NCBDDD leadership reviewed the FY 2012 budget proposal, attempted to answer questions regarding the impact of this proposal on grant making activities, and described plans for the development of a complete transition plan by September 2011.

Phase 2: Partner and Congressional Staff Meetings (April – June 2011)

From April through June 2012, NCBDDD leadership convened and participated in five facilitated partner engagement meetings. The facilitated partner meetings were designed to explain NCBDDD’s initial consolidation plans and provide partners the opportunity to express their preferences for how such a consolidation plan would proceed and how program activities would be prioritized beginning in FY 2012 and moving forward.

During these partner meetings, NCBDDD leadership described the four key strategies that comprised the initial NCBDDD consolidation framework:

  1. Most new and continuation awards issued in FY 2011 will be time limited to a 3-year award period.

  2. Existing funding agreements that expire in FY 2012 and identified for consolidation will be consolidated or will be granted short-term funding extensions in order to unify current funding cycles and to facilitate the consolidation effort.

  3. Funds from selected agreements that expire in FY 2011 and FY 2012 will be put into the new consolidated budget framework with a likely transitional project period of two years. Selected agreements which expire in 2013 through 2016 will be consolidated into a new five year project period agreement incorporating “lessons learned” from the prior two year agreement.

  4. Two programs that will be awarded 5-year funding in 2011 (Autism and Early Hearing Detection and Intervention) will not change under this new strategy, as they already meet the requirements of the budget consolidation.

NCBDDD leadership also provided two briefings for Congressional appropriations staff on the budget consolidation proposal.

Phase 3: Partner Listening Session (August 11, 2011)

Opportunity for dialogue with partner groups, allowing input the proposed budget consolidation plan currently under development at NCBDDD.



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