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HRQOL Measurement

Measurement Issues/Concerns

Salomon JA, Nordhagen S, Oza S, Murray CJ. Are Americans feeling less healthy? The puzzle of trends in self-rated health. Am J Epidemiol 2009;170(3):343-351. abstract

Revicki DA, Kawata AK, Harnam N, Chen WH, Hays RD, Cella D. Predicting EuroQol (EQ-5D) scores from the patient-reported outcomes measurement information system (PROMIS) global items and domain item banks in a United States sample. Qual Life Res 2009;18(6):783-791. abstract

Jia H, Lubetkin EI. Time trends and seasonal patterns of health-related quality of life among U.S. adults. Public Health Rep 2009;124(5):692-701. abstract

Hays RD, Kim S, Spritzer KL, Kaplan RM, Tally S, Feeny D et al. Effects of mode and order of administration on generic health-related quality of life scores. Value Health 2009;12(6):1035-1039. abstract

Jiang Y, Hesser JE. Patterns of health-related quality of life and patterns associated with health risks among Rhode Island adults. Health Qual Life Outcomes. 2008 Jul 11;6:49. abstract

Fryback DG, Dunham NC, Palta M, Hanmer J, Buechner J, Cherepanov D, Herrington SA, Hays RD, Kaplan RM, Ganiats TG, Feeny D, Kind P. U.S. norms for six generic health-related quality-of-life indexes from the national health measurement study. Med Care 2007;45(12):1162–1170. abstract

Hanmer J, Hays R, Fryback DG. Mode of administration is important in U.S. national estimates of health-related quality of life. Med Care 2007;45(12):1171–1179. abstract

Kim D, Kawachi I. U.S. State-level social capital and health-related quality of life: multilevel evidence of main, mediating, and modifying effects. Ann Epidemiol 2007;17(4):258–69. Epub 2007 Feb 26. abstract

Reeve BB, Burke LB, Chiang YP, Clauser SB, Colpe LJ, Elias JW, Fleishman J, Hohmann AA, Johnson-Taylor WL, Lawrence W, Moy CS, Quatrano LA, Riley WT, Smothers BA, Werner EM. Enhancing measurement in health outcomes research supported by Agencies within the US Department of Health and Human Services. Qual Life Res 2007;16 Suppl 1:175–186. Epub 2007 May 26. abstract

Rohrer JE, Arif A, Denison A, Young R, Adamson S. Overall self-rated health as an outcome indicator in primary care. J Eval Clin Pract 2007 Dec;13(6):882-888. abstract

Schwartz C, Andresen E, Nosek M, Krahn G. Response shift theory: important implications for measuring quality of life in people with disability. Arch Phys Med Rehabil 2007 Apr;88(4):529–536. abstract

Stewart ST, Woodward RM, Rosen AB, Cutler DM. A proposed method for monitoring U.S. population health: linking symptoms, impairments, and health ratings. NBER Working Papers 2007;11358:1-56. pdf [270K]

Booske BC, Kindig DA, Remington PL, Kempf AM, Peppard PE. How should we measure health-related quality of life in Wisconsin? University of Wisconsin Population Health Institute Brief Report 2006;1(1):1–5. pdf [266K]

Miller W, Robinson LA, Lawrence RS (Eds); Committee to evaluate measures of health benefits for environmental, health, and safety regulation board on health care services. Valuing health for regulatory cost-effectiveness analysis. Institute of Medicine, National Academies Press, Washington, D.C., 2006:1-364. abstract html

Link M, Osborn L, Induni M, Battaglia M, Frankel M. Behavior coding assessment of the quality of real-time telephone survey interpreters. In: Proceedings of the 2006 Joint Statistical Meetings/American Statistical Association Conference [CD-ROM]; 2006 Aug 6–10; Seattle, Washington. Alexandria, VA: American Statistical Association 2006. pdf [74K]

Donovan D, Mattson ME, Cisler RA, Longabaugh R, Zweben A. Quality of life as an outcome measure in alcoholism treatment research. J Stud Alcohol 2005; (Jul-Suppl)15:119–39. abstract

Lubetkin EI, Jia H, Franks P, Gold MR. Relationship among sociodemographic factors, clinical conditions, and health-related quality of life: examining the EQ-5D in the U.S. general population. Qual Life Res 2005;14(10):2187–2196. abstract

Luskin AT. What the asthma end points we know and love do and do not tell us. J Allergy Clin Immunol 2005;115(4 Suppl):S539–S545. abstract

Servoss TJ, Donnelly JP. Developing more comprehensive models for predicting physical and mental unhealthy days (Abstract)—presentation at the annual meeting of the International Society for Quality of Life Research, October 19–22, 2005, San Francisco, California (abstract). Qual Life Res 2005;14(9):2056.

Jia H, Muennig P, Borawski E. Comparison of small-area analysis techniques for estimating county-level outcomes. Am J Prev Med 2004;26(5):453–460. abstract

Michalos AC. Social indicators research and health-related quality of life research. Social Indicators Research 2004;65(1):27–72.

Andresen EM, Recktenwald A, Gillespie K. Population estimates of utilities: the Health and Activity Limitation Index (HALEX) (Abstract)—presentation at the10th annual meeting of the International Society for Quality of Life Research, Nov 12–15, 2003 in Prague, Czech Republic. Qual Life Res 2003;12(7):737.

Moriarty DG, Zack MM, Kobau R. The Centers for Disease Control and Prevention's healthy days measures—population tracking of perceived physical and mental health over time. Health Qual Life Outcomes 2003;1(37)1–8. abstract html pdf [295K]

Segui-Gomez M, MacKenzie EJ. Measuring the public health impact of injuries. Epidemiol Rev 2003;25:3–19. abstract html pdf [345K]

Michalos AC, Zumbo BD. Healthy days, health satisfaction with the overall quality of life. Social Indicators Research 2002;59(3): 321–338.

Moriarty D, Zack M. Seasonal patterns in health-related quality of life among adults-Behavioral Risk Factor Surveillance System (BRFSS), 1993–2000 (presentation abstract). Quality of Life Research, Abstracts Issue, 9th Annual Conference of the International Society for Quality of Life Research, Orlando, Florida, 2002;11(7):635.

Davis S. Requirements for population data. Section 3 of the Abt project: Analyses for Improved Information in Managed Care: The Data Framework for the 21st Century. MHSIP 2001. html

Hagerty MR, Cummins RA, Ferriss AL, Land K, Michalos AC, Peterson M, Sharpe A, Sirgy J, Vogel J. Quality of life indexes for national policy: review and agenda for research. Social Indicators Research 2001;55(1):1–96. See

Nelson DE. Holtzman D. Bolen J. Stanwyck CA. Mack KA. Reliability and validity of measures from the Behavioral Risk Factor Surveillance System (BRFSS). Sozial- und Praventiv Medizin 2001;1:(46 Suppl) S3–42.

Andresen EM, Fitch CA, McLendon PM, Meyers AR. Reliability and validity of disability questions for US Census 2000. American Journal of Public Health 2000;90(8):1297–1299. abstract pdf [65K]

Gold M. Summary measures of population health and beyond: a look at U.S. federal activities in measuring the health of populations. WHO Conference. Statistical Commission and Economic Commission for Europe 2000. Working paper No. 11. Ottawa Canada, 23–25. pdf [41K]

Borawski EA, Jia H, Wu GW and Case Western Reserve University. The use of the Behavioral Risk Factor Surveillance System (BRFSS) to estimate the prevalence of state and substate disability. Atlanta, Georgia: U.S. Department of Health and Human Services, Public Health Service, Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, 1999.

Jia H. Small area estimates of severe work disability prevalence based on the Behavioral Risk Factor Surveillance System. Doctoral thesis; Department of Epidemiology and Biostatistics, Case Western Reserve University; E. Borawski, Thesis Advisor; May 1999, 201pp.

Wilson BF, Benais S, Whitaker K, Beatty P, Hendershot G. Improving the feasibility of including deaf respondents in telephone surveys. National Center for Health Statistics, Proceedings of the Survey Research Methods Section, American Statistical Association 1998: 883–887. pdf [461K]

Borawski E, Bowlin, S, Wu G, Jia H, Chen H. The use of the Behavioral Risk Factor Surveillance System (BRFSS) in estimating disability at the state and substate levels (abstract). Proceedings, Annual Meeting of the American Public Health Association, Indianapolis 1997:350.

Gift H. Quality of life–an outcome of oral health care? Public Health Dentistry 1996;56(2):67–68.

Centers for Disease Control and Prevention. Consultation on functional status surveillance for states and communities: report of a meeting held on June 4–5, 1992, Decatur, Georgia. Atlanta: Centers for Disease Control and Prevention (1993).

Centers for Disease Control and Prevention. Workshop on quality of life/health status surveillance for states and communities: report of a meeting held on December 2–4, 1991, Stone Mountain, Georgia. Atlanta: Centers for Disease Control and Prevention (1993).

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