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National Organizations

The national organizations are important resources and collaborators implementing perinatal HIV prevention programs. The following organizations were funded by CDC for perinatal HIV prevention beginning in September 2007. Each of these organizations can offer technical assistance and program materials to health departments and other organizations with an interest in perinatal HIV prevention. Planned programmatic activities for each organization are described below:


American College of Obstetricians and Gynecologists (ACOG)
ACOG promotes state laws/regulations that are consistent with national/federal guidelines for universal HIV testing as a routine component of prenatal care, including third trimester and labor & delivery testing as appropriate. ACOG published recent (November 2004) guidelines on HIV screening for pregnant women, and they have developed educational materials for both providers and patients. They distribute a legislative toolkit to assist legislators when crafting new or revised perinatal HIV legislation. ACOG is also working to develop state-specific materials on HIV testing requirements for pregnant women, as well as develop continuing medical education materials for providers. For more information or to receive these materials, visit ACOG’s perinatal HIV website.

ACOG is also collaborating on the FHPP program (see CityMatCH, below).

CityMatCH
CityMatCH focuses on improving maternal and child health in urban communities. They are collaborating with ACOG to develop, implement, and evaluate a modified Fetal and Infant Mortality Review (FIMR) program to investigate and address barriers to further reduction of perinatal HIV transmission in communities. A pilot phase of the FIMR-HIV Pilot Project (FHPP) is underway in three communities, and in the future CityMatCH plans to work to disseminate the outcomes and lessons learned from this activity. For more information, contact Chad Abresch.

François-Xavier Bagnoud Center (FXBC)
FXBC has expertise in provider training for perinatal HIV prevention in a wide variety of settings, but particularly for physicians and nurses. They are working to complete a series of strategic planning meetings designed to assist hospitals in developing rapid HIV testing programs in their labor and delivery units and emergency departments; a follow-up evaluation of participating hospitals will be conducted. Future plans include training and technical assistance to hospitals and healthcare providers to increase their knowledge and expertise in preventing perinatal HIV transmission in the US. They also plan to develop recommendations on strategies to improve inter-conceptual care through the integration of HIV management and reproductive health and family planning services for women with HIV infection. For more information, contact Carolyn Burr or Elaine Gross.

Health Research and Educational Trust (HRET)
HRET, the research and educational affiliate of the American Hospital Association, promotes the availability of HIV testing and preventive interventions to their membership, and particularly promotes recommending HIV testing to women who arrive at labor and delivery without a documented HIV test as the standard of care. They are distributing a toolkit for all U.S. birth hospitals to promote perinatal prevention, with emphasis on rapid HIV testing in labor and delivery units. HRET is also planning a series of workshops for clinicians in hospital labor and delivery units, nurseries, laboratories, and pharmacies to assist in the implementation of rapid HIV testing in labor and delivery. They will also provide direct technical assistance to hospitals. For more information, contact Francie Margolin.

National Black Alcoholism and Addictions Council (NBAC)
NBAC plans an intensive examination of the policies and practices of substance abuse treatment services involving access, treatment and referral for HIV positive women in Central Florida, as a sample of current practices. This data will be compared with existing policies and practices in diverse geographical areas to develop a model of national technical guidance to help providers achieve high HIV screening rates for women of reproductive age in substance abuse treatment services. This information will help guide effective perinatal HIV prevention efforts in other areas. We will collaborate with the National Perinatal Project Group in order to maximize the development of best practices and dissemination of the technical guidance. For more information, contact John Robertson.

National HIV/AIDS Clinicians Consultation Center (NCCC) Perinatal Hotline
The NCCC offers three hotlines exclusively for healthcare workers. The Perinatal HIV Hotline (888.448.8765) is a resource that provides free clinical consultation on treating HIV-infected pregnant women and their infants and advice on indications and interpretations of HIV testing in pregnancy. The hotline is available 24/7, and includes access to a Perinatal Referral Network of 250 healthcare professionals that can link patients with primary and specialty care and other essential services nationwide. For more information, contact Shannon Weber. The NCCC’s Warmline (800.933.3413) offers clinical advice on HIV testing, antiretroviral treatment, drug interactions, resistance testing, management of opportunistic infections, and primary care of persons with HIV/AIDS. The PEPline (888.448.4911) provides around-the-clock advice on managing occupational exposures to HIV and hepatitis B and C.

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