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More Detailed Information on Key Tier 1 Applications - Lynch Syndrome


Lynch Syndrome tools and educational materials

LS Tier 1 tools and educational materials from states and other sources

Surveillance Tools/Resources


Michigan Department of Community Health Cancer Genomics Surveillance Report

Michigan Cancer Surveillance Program Cancer Report Form [PDF 105.30KB]

Oregon Healthcare Provider Cancer Genomics Survey  [PDF 240.46 KB]

Oregon HA Cancer Genetic Insurance Questions for Insurers [PDF 129.08 KB]

The University of Washington has compiled a series of genomics and family health history survey questions.

Lynch Syndrome Screening Network (LSSN) EGAPP LS Recommendation Data from 91 LSSN applications [PDF 132.83 KB]

Oregon logic model [PDF 125.35 KB] and data sources charts [PDF 22.85 KB]


Education Tools/Resources


Connecticut LS Fact Sheet [PDF 146.60 KB]

New York State Department of Health Cancer Genetic Counseling Poster [PDF 560.28 KB]

Michigan Department of Community Health created and copyrighted a risk assessment tool called the Cancer Family History Pocket Guide, a hand held tool for providers that assists with risk assessment and referral guidelines for patients with a family history of breast, ovarian, colorectal or endometrial cancer. The process used to develop the pocket guide is described in a poster [PDF147.49 KB]. They have to date distributed more than 15,000 of these tools [PDF 56.41 KB] to assist providers in identifying high risk patients for referral to a genetics specialist.

Genetic Alliance brochures on LS developed in partnership with Lynch Syndrome International with funding from OPHG: Genetic Testing and Cancer Prevention for Lynch Syndrome; Lynch Syndrome [PDF 434.09 KB] and Talking to Family about Lynch Syndrome [PDF 332.61 KB]

Ohio State University Comprehensive Cancer Center Fact Sheet [PDF 107.75 KB]

Talking Turkey about Lynch Syndrome webinar with Heather Hampel, MS, CGC, Brian Mansfield and Bill Harb, MD -  November 2012

Michigan Cancer Consortium information (includes wide range of information on Lynch syndrome)  

The Lynch Syndrome Surveillance Network: website includes a a number of educational materials.

The American Society of Clinical Oncology has produced Basic Elements of Informed Consent for Cancer Susceptibility Testing which can be used to help develop an appropriate informed consent form.

National Library of Medicine Genetics Home Reference information on LS.

National Cancer Institute (NCI) information on genetics of colorectal cancer )

NCI Video: Collaborating for Impact: Public Health Genomics and Cancer Control

Kin Talk a social networking site, developed by genetic counselors at the University of California – San Francisco for individuals and families with LS, to help families deal with the difficult questions that arise when cascade screening for LS is initiated.

Cancer.net information about sharing genetic test results with your family

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