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Family History for Public Health and Preventive Medicine: Developing a Research Agenda


A Report for the
Office of Genomics and Disease Prevention
National Center for Environmental Health
Centers for Disease Control and Prevention
Prepared by Susan Baker Toal, MPH
August 19, 2002


Appendix B: Family History Workshop Agenda

Wednesday, May 1, 2002

MORNING SESSION
Moderator: Maren Scheuner, Cedars-Sinai Medical Center
8:30 a.m.CDC Welcome..................................................................Muin Khoury
Director, Office of Genomics and Disease Prevention, CDC
8:40 a.m.Introduction to the Workshop and Participants...............Maren Scheuner
Cedars-Sinai Medical Center
9:00 a.m.Background and Evaluation Process (ACCE).....................Paula Yoon
Office of Genomics and Disease Prevention, CDC
9:15 a.m.

Family-Centered Approaches to Understanding................Sharon Kardia
and Intervening in Coronary Heart Disease University of Michigan

a. Presentation – 20 minutes
b. Discussion – 10 minutes

9:45 a.m.

Family History of Colorectal Cancer.................................... Bob Millikan
University of North Carolina, Chapel Hill

a. Presentation – 20 minutes
b. Discussion – 10 minutes

10:15 a.m.BREAK
10:30 a.m.

Can Family History of Type-2 Diabetes to be used............Karen Edwards
as a Tool for Public Health? University of Washington

a. Presentation – 20 minutes
b. Discussion – 10 minutes

11:00 a.m.

Family History as a Potential Tool in Asthma Prevention.....Wylie Burke
University of Washington

a. Presentation – 20 minutes
b. Discussion – 10 minutes

11:30 a.m.LUNCH
SESSION I. ANALYTIC VALIDITY
Moderator: Robin Bennett, University of Michigan
1:00 p.m.Documenting the Family Health History: An............. Kristen Peterson Oehlke
Overview of AvailableTools Office of Genomics and Disease Prevention, CDC
1:15 p.m.Family History as a Tool for Risk Assessment in.............. Hoda Anton-Culver
Public Health Research and Practice and In Preventive Medicine University of California, Irvine
1:35 p.m.Group Discussion – IdentifyKnowledge Gaps and Describe Studies Needed to Assess Analytic Validity
SESSION II. CLINICAL VALIDITY
Moderator: Marta Gwinn, Office of Genomics and Disease Prevention, CDC
2:15 p.m.Family History Collection and Pedigree Analysis.................. Maren Scheuner
2:35 p.m.Family History of Cancer and Cancer Screening in the.......... Ingrid Hall
General Population National Center for Chronic Disease Prevention and Health Promotion, CDC
2:45 p.m.Do Americans Know Their Family History of ........... Joelyn Tonkin
Asthma and Heart Disease? Office of Genomics and Disease Prevention, CDC
3:00 p.m.BREAK
3:15 p.m.Group Discussion – Identify Knowledge Gaps and Describe Studies Needed to Assess Clinical Validity
SESSION III.A CLINICAL UTILITY
Moderator: Christopher Friedrich, University of Mississippi Medical Center
4:00 p.m.Population Versus High-Risk Prevention Strategies: ........... Steven Hunt
Do We Need to Choose? University of Utah
4:20 p.m.Association Between Family History of Colorectal Cancer........... Jill Morris
and Preventive Health Behaviors in Women – United States, 1997
Office of Genomics and Disease Prevention, CDC
4:35 p.m.Using Decision Analytic Method to Assess the Utilityof Family History for Public Health and Preventive Medicine........... Anupam Tyagi
National Center for Chronic Disease and Prevention and Health Promotion, CDC
4:50 p.m.Discussion
5:15 p.m.ADJOURN

Thursday, May 2, 2002

8:30 a.m.Overview of the First Day........... Maren Scheuner
SESSION III.B CLINICAL UTILITY
Moderator: Christopher Friedrich, University of Mississippi Medical Center
8:45 a.m.Can Knowledge of Family History Affect Behavior Change:......... Janet Audrain
Using Family History of Breast Cancer as an Example?
Univ. of Pennsylvania
9:15 a.m.Group Discussion – Identify Knowledge Gaps and Describe Studies Needed to Assess Clinical Utility
10:00 a.m.BREAK
SESSION IV. ETHICAL, LEGAL, AND SOCIAL ISSUES (ELSI)
Moderator: Wylie Burke, University of Washington
10:15 a.m.Using Family History to Achieve Public Health Goals:........... Wylie Burke
Ethical, Legal, and Social Issues
University of Washington
10:45 a.m.Group Discussion –Identify Knowledge Gaps and Describe Studies Needed to Assess ELSI
11:15 a.m.What We Have Learned: A Research Agenda........... Muin Khoury

11:45 a.m.
Closing........... Maren Scheuner

ADJOURN

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