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Family History for Public Health and Preventive Medicine: Developing a Research Agenda

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	image of tree with people, family records, and a dna strandA Report for the
Office of Genomics and Disease Prevention
National Center for Environmental Health
Centers for Disease Control and Prevention
Prepared by Susan Baker Toal, MPH
August 19, 2002

 


Appendix B: Family History Workshop Agenda

Wednesday, May 1, 2002

MORNING SESSION
Moderator: Maren Scheuner, Cedars-Sinai Medical Center
8:30 a.m. CDC Welcome..................................................................Muin Khoury
Director, Office of Genomics and Disease Prevention, CDC
8:40 a.m. Introduction to the Workshop and Participants...............Maren Scheuner
Cedars-Sinai Medical Center
9:00 a.m. Background and Evaluation Process (ACCE).....................Paula Yoon
Office of Genomics and Disease Prevention, CDC
9:15 a.m. Family-Centered Approaches to Understanding................Sharon Kardia
and Intervening in Coronary Heart Disease University of Michigan
a. Presentation – 20 minutes
b. Discussion – 10 minutes
9:45 a.m. Family History of Colorectal Cancer.................................... Bob Millikan
University of North Carolina, Chapel Hill
a. Presentation – 20 minutes
b. Discussion – 10 minutes
10:15 a.m. BREAK
10:30 a.m. Can Family History of Type-2 Diabetes to be used............Karen Edwards
as a Tool for Public Health? University of Washington
a. Presentation – 20 minutes
b. Discussion – 10 minutes
11:00 a.m. Family History as a Potential Tool in Asthma Prevention.....Wylie Burke
University of Washington
a. Presentation – 20 minutes
b. Discussion – 10 minutes
11:30 a.m. LUNCH
SESSION I. ANALYTIC VALIDITY
Moderator: Robin Bennett, University of Michigan
1:00 p.m. Documenting the Family Health History: An............. Kristen Peterson Oehlke
Overview of Available Tools Office of Genomics and Disease Prevention, CDC
1:15 p.m. Family History as a Tool for Risk Assessment in.............. Hoda Anton-Culver
Public Health Research and Practice and In Preventive Medicine University of California, Irvine
1:35 p.m. Group Discussion – IdentifyKnowledge Gaps and Describe Studies Needed to Assess Analytic Validity
SESSION II. CLINICAL VALIDITY
Moderator: Marta Gwinn, Office of Genomics and Disease Prevention, CDC
2:15 p.m. Family History Collection and Pedigree Analysis.................. Maren Scheuner
2:35 p.m. Family History of Cancer and Cancer Screening in the.......... Ingrid Hall
General Population National Center for Chronic Disease Prevention and Health Promotion, CDC
2:45 p.m. Do Americans Know Their Family History of ........... Joelyn Tonkin
Asthma and Heart Disease? Office of Genomics and Disease Prevention, CDC
3:00 p.m. BREAK
3:15 p.m. Group Discussion – Identify Knowledge Gaps and Describe Studies Needed to Assess Clinical Validity
SESSION III.A CLINICAL UTILITY
Moderator: Christopher Friedrich, University of Mississippi Medical Center
4:00 p.m. Population Versus High-Risk Prevention Strategies: ........... Steven Hunt
Do We Need to Choose? University of Utah
4:20 p.m. Association Between Family History of Colorectal Cancer........... Jill Morris
and Preventive Health Behaviors in Women – United States, 1997
Office of Genomics and Disease Prevention, CDC
4:35 p.m. Using Decision Analytic Method to Assess the Utilityof Family History for Public Health and Preventive Medicine........... Anupam Tyagi
National Center for Chronic Disease and Prevention and Health Promotion, CDC
4:50 p.m. Discussion
5:15 p.m. ADJOURN
Thursday, May 2, 2002
8:30 a.m. Overview of the First Day........... Maren Scheuner
SESSION III.B CLINICAL UTILITY
Moderator: Christopher Friedrich, University of Mississippi Medical Center
8:45 a.m. Can Knowledge of Family History Affect Behavior Change:......... Janet Audrain
Using Family History of Breast Cancer as an Example?
Univ. of Pennsylvania
9:15 a.m. Group Discussion – Identify Knowledge Gaps and Describe Studies Needed to Assess Clinical Utility
10:00 a.m. BREAK
SESSION IV. ETHICAL, LEGAL, AND SOCIAL ISSUES (ELSI)
Moderator: Wylie Burke, University of Washington
10:15 a.m. Using Family History to Achieve Public Health Goals:........... Wylie Burke
Ethical, Legal, and Social Issues
University of Washington
10:45 a.m. Group Discussion –Identify Knowledge Gaps and Describe Studies Needed to Assess ELSI
11:15 a.m. What We Have Learned: A Research Agenda........... Muin Khoury

11:45 a.m.
Closing........... Maren Scheuner
ADJOURN
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