Events
Family History for Public Health and Preventive Medicine: Developing a Research Agenda
A Report for the
Office of Genomics and Disease Prevention
National Center for Environmental Health
Centers for Disease Control and Prevention
Prepared by Susan Baker Toal, MPH
August 19, 2002
- Back to the Main Document
- Appendix A: Participant Roster
- Appendix B: Agenda
- Appendix C: Worksheets
- Appendix D: Selected Bibliography
Appendix B: Family History Workshop Agenda
Wednesday, May 1, 2002
| MORNING SESSION Moderator: Maren Scheuner, Cedars-Sinai Medical Center |
|
|---|---|
| 8:30 a.m. | CDC Welcome..................................................................Muin Khoury Director, Office of Genomics and Disease Prevention, CDC |
| 8:40 a.m. | Introduction to the Workshop and Participants...............Maren Scheuner Cedars-Sinai Medical Center |
| 9:00 a.m. | Background and Evaluation Process (ACCE).....................Paula Yoon Office of Genomics and Disease Prevention, CDC |
| 9:15 a.m. | Family-Centered Approaches to Understanding................Sharon Kardia
|
| 9:45 a.m. | Family History of Colorectal Cancer.................................... Bob Millikan
|
| 10:15 a.m. | BREAK |
| 10:30 a.m. | Can Family History of Type-2 Diabetes to be used............Karen Edwards
|
| 11:00 a.m. | Family History as a Potential Tool in Asthma Prevention.....Wylie Burke
|
| 11:30 a.m. | LUNCH |
| SESSION I. ANALYTIC VALIDITY
Moderator: Robin Bennett, University of Michigan |
|
| 1:00 p.m. | Documenting the Family Health History: An............. Kristen Peterson Oehlke Overview of Available Tools Office of Genomics and Disease Prevention, CDC |
| 1:15 p.m. | Family History as a Tool for Risk Assessment in.............. Hoda Anton-Culver Public Health Research and Practice and In Preventive Medicine University of California, Irvine |
| 1:35 p.m. | Group Discussion – IdentifyKnowledge Gaps and Describe Studies Needed to Assess Analytic Validity |
| SESSION II. CLINICAL VALIDITY Moderator: Marta Gwinn, Office of Genomics and Disease Prevention, CDC |
|
| 2:15 p.m. | Family History Collection and Pedigree Analysis.................. Maren Scheuner |
| 2:35 p.m. | Family History of Cancer and Cancer Screening in the.......... Ingrid Hall General Population National Center for Chronic Disease Prevention and Health Promotion, CDC |
| 2:45 p.m. | Do Americans Know Their Family History of ........... Joelyn Tonkin Asthma and Heart Disease? Office of Genomics and Disease Prevention, CDC |
| 3:00 p.m. | BREAK |
| 3:15 p.m. | Group Discussion – Identify Knowledge Gaps and Describe Studies Needed to Assess Clinical Validity |
| SESSION III.A CLINICAL UTILITY Moderator: Christopher Friedrich, University of Mississippi Medical Center |
|
| 4:00 p.m. | Population Versus High-Risk Prevention Strategies: ........... Steven Hunt Do We Need to Choose? University of Utah |
| 4:20 p.m. | Association Between Family History of Colorectal Cancer........... Jill Morris and Preventive Health Behaviors in Women – United States, 1997 Office of Genomics and Disease Prevention, CDC |
| 4:35 p.m. | Using Decision Analytic Method to Assess the Utilityof Family History for Public Health and Preventive Medicine........... Anupam Tyagi National Center for Chronic Disease and Prevention and Health Promotion, CDC |
| 4:50 p.m. | Discussion |
| 5:15 p.m. | ADJOURN |
Thursday, May 2, 2002
| 8:30 a.m. | Overview of the First Day........... Maren Scheuner |
|---|---|
| SESSION III.B CLINICAL UTILITY Moderator: Christopher Friedrich, University of Mississippi Medical Center |
|
| 8:45 a.m. | Can Knowledge of Family History Affect Behavior Change:......... Janet Audrain Using Family History of Breast Cancer as an Example? Univ. of Pennsylvania |
| 9:15 a.m. | Group Discussion – Identify Knowledge Gaps and Describe Studies Needed to Assess Clinical Utility |
| 10:00 a.m. | BREAK |
| SESSION IV. ETHICAL, LEGAL, AND SOCIAL ISSUES (ELSI) Moderator: Wylie Burke, University of Washington |
|
| 10:15 a.m. | Using Family History to Achieve Public Health Goals:........... Wylie Burke Ethical, Legal, and Social Issues University of Washington |
| 10:45 a.m. | Group Discussion –Identify Knowledge Gaps and Describe Studies Needed to Assess ELSI |
| 11:15 a.m. | What We Have Learned: A Research Agenda........... Muin Khoury |
11:45 a.m. |
Closing........... Maren Scheuner |
ADJOURN |
|
Contact Us:
- CDC-INFO Contact Center
Phone: 800-232-4636 (800-CDC-INFO)
Hearing Impaired: 888-232-6348 - cdcinfo@cdc.gov
- Additional information for Public Health Genomics is available on our contact page.
