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Health-care/Outcome Studies

Primary Care Performance Indicators for the Management of Epilepsy in Children
Principal Investigator: Diedre A. Caplin, PhD
University of Utah, Salt Lake City, UT

Purpose: to develop indicators of best practice in the medical care of children with epilepsy, by means of a systematic review of scientific literature evaluated by an expert consensus panel.

Publication:

Caplin DA, Rao JK, Filloux F, Bale JF, van Orman C. Development of performance indicators for the primary care management of pediatric epilepsy: expert consensus recommendations based on the available evidence. Epilepsia 2006;47:2011–2019.

Examining Epilepsy Care Using a Multifaceted Approach
Principal Investigator: Lewis Kazis, ScD
Boston University School of Public Health, Boston MA

Purpose: to develop and test criteria to assess the quality of care for treating adults diagnosed with epilepsy and to identify outcome measures to assess the impact of these best practices.

Publication:

Pugh MJ, Berlowitz DR, Montouris G, Bokhour B, Cramer JA, Bohm V, Bollinger M, Helmers S, Ettinger A, Meador KJ, Fountain N, Boggs J, Tatum WO 4th, Knoefel J, Harden C, Mattson RH, Kazis L. What constitutes high quality of care for adults with epilepsy? Neurology 2007; 69(21):2020–7.

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South Carolina Health Outcomes Project on Epilepsy
Principal Investigator: Anbesaw Selassie, DrPH
Medical University of South Carolina, Charleston, SC

Purpose: to assess socioeconomic and other factors that contribute to health disparities and affect health outcomes among people with epilepsy living in 15 counties in South Carolina.

Publication:

Smith G, Ferguson PL, Saunders LL, Wagner JL, Wannamaker BB, Selassie AW. Psychosocial factors associated with stigma in adults with epilepsy. Epilepsy & Behavior 2009 ; 16(3):484–90.

Socioeconomic Status, Health Care Use, and Outcomes in Epilepsy
Principal Investigator: Charles Begley, PhD
University of Texas School of Public Health, Houston, TX

Purpose: to assess the relationships between demographic variables, socioeconomic status, health care use, cost, and outcomes in a diverse population of people with epilepsy.

Publication:

Begley CE, Basu R, Reynolds T, Lairson DR, Dubinsky S, Newmark M, Barnwell F, Hauser A, Hesdorffer D, Hernandez N, Karceski SC, Shih T. Sociodemographic disparities in epilepsy care: results from the Houston/New York City health care use and outcomes study. Epilepsia 2009; 50(5):1040–50.

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