Scientific Articles by Topic
Browse selected scientific articles published in journals and books. Articles are organized by topic.
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Access to Care
Tian N, Kobau R, Zack MM, Greenlund KJ. Barriers to and disparities in access to health care among adults aged ≥18 years with epilepsy. MMWR Morb Mortal Wkly Rep. 2022;71:697-702. Doi: http://dx.doi.org/10.15585/mmwr.mm7121a1
Tian N, Boring M, Kobau R, Zack M, Croft J. Active Epilepsy and Seizure Control in Adults — United States, 2013 and 2015. MMWR. 2018;67(15):437-442. doi: 10.15585/mmwr.mm6715a1. html
Centers for Disease Control and Prevention Epilepsy Program. Among adults with epilepsy reporting recent seizures, one of four on antiseizure medication and three of four not on medication had not seen a neurologist/epilepsy specialist within the last year, the 2010 and 2013 US National Health Interview Surveys. Epilepsy Behav. 2016;61:78-79. doi: 10.1016/j.yebeh.2016.04.031.
Thurman DJ, Kobau R, Luo Y, Helmers S, Zack MM. Health-care access among adults with epilepsy: The U.S. National Health Interview Survey, 2010 and 2013. Epilepsy Behav. 2015, ePub before print. doi: 10.1016/j.yebeh.2015.10.028.
Kobau R, Luo YH, PhD, Zack MM, Helmers S, Thurman DJ. Epilepsy in adults and access to care — United States, 2012. MMWR. 2012;61(45);909-913. html. Accessed October 10, 2014.pdf [863KB].
Smith G, Ferguson PL, Saunders LL, Wagner JL, Wannamaker BB, Selassie AW. Psychosocial factors associated with stigma in adults with epilepsy. Epilepsy Behav. 2009;16(3):484-490. doi: 10.1016/j.yebeh.2009.08.028
Escoffery C, DiIorio C, Yeager KA, et al. Use of computers and the Internet for health information by patients with epilepsy. Epilepsy Behav. 2008;12(1):109–14. Abstract. Accessed October 10, 2014.
Ferguson PL, Chiprich J, Smith G, et al. Prevalence of self-reported epilepsy, health care access, and health behaviors among adults in South Carolina. Epilepsy Behav. 2008;13(3):529-34. doi: 10.1016/j.yebeh.2008.05.005
Comorbidity
Tian N, Matthew Zack M, Wheaton AG, Greenlund KJ, Croft JB. Epilepsy and chronic obstructive pulmonary disease among U.S. adults: National Health Interview Survey 2013, 2015, and 2017. Epilepsy Behav. 2020;110:107175. doi: 10.1016/j.yebeh.2020.107175
Zack M, Luncheon C. Adults with an epilepsy history, especially those 45 years or older, those with lower family incomes, and those with a history of hypertension, report a history of stroke five times as often as adults without such a history-2010, 2013, and 2015 U.S. National Health Interview Survey. Epilepsy Behav. 2018;83:236-238. doi: 10.1016/j.yebeh.2018.02.028
Wagner JL, Wilson DA, Smith G, Malek A, Selassie AW. Neurodevelopmental and mental health comorbidities in children and adolescents with epilepsy and migraine: a response to identified research gaps. Dev Med Child Neurol. 2015;57(1):45-52. doi: 10.1111/dmcn.12555
Selassie AW, Wilson DA, Martz GU, et al. Epilepsy beyond seizure: A population-based study of comorbidities. Epilepsy Res. 2014;108:305-315. doi: 10.1016/j.eplepsyres.2013.12.002
Kadima NT, Kobau R, Zack MM, Helmers S. Comorbidity in Adults with Epilepsy — United States, 2010. MMWR. 2013;62(43):849-853. html. Accessed October 10, 2014.[pdf – 546KB].
Strine TW, Kobau R, Chapman DP, Thurman DJ, Price PH, Balluz L. Psychological distress, comorbidities, and health behaviors among US adults with seizures: results from the 2002 National Health Interview Survey. Epilepsia. 2005:46(7):1133–1139. Abstract. Accessed October 10, 2014.
Cost
Moura LMVR, Karakis I, Zack MM, Tian N, Kobau R, Howard D. Drivers of US health care spending for persons with seizures and/or epilepsies, 2010-2018 [published online ahead of print, 2022 May 17]. Epilepsia. 2022;10.1111/epi.17305. doi:10.1111/epi.17305
Lindgren S, Lauer E, Momany E, et al. Disability, hospital care, and cost: utilization of emergency and inpatient care by children with intellectual and developmental disabilities (IDD). J Pediatr. 2021;229:259-266. doi: 10.1016/j.jpeds.2020.08.084
Begley CE, Famulari M, Annegers JF, et al. The cost of epilepsy in the United States: an estimate from population-based clinical and survey data. Epilepsia.. 2000;41(3):342-351. Abstract. Accessed October 10, 2014.
Miller GF, Coffield E, Leroy Z, Wallin R. Prevalence and costs of five chronic conditions in children. J Sch Nurs. 2016;32(5):357-364. doi: 10.1177/1059840516641190
Cysticercosis and Neurocysticercosis
Croker C, Redelings M, Reporter R, Sorvillo F, Mascola L, et al. The impact of neurocysticercosis in California: a review of hospitalized cases. PLOS Negl Trop Dis 2012;6(1). doi: 10.1371/journal.pntd.0001480
Sorvillo F, Wilkins P, Shafir S, Eberhard M. Public health implications of cysticercosis acquired in the United States. Emerg Infect Dis. 2011;17(1):1-6. doi: 10.3201/eid1701.101210
Handali S, Klarman M, Gaspard AN, Dong XF, Laborde R et al. Development and evaluation of a magnetic immunochromatographic test to detect Taenia solium, which causes taeniasis and neurocysticercosis in humans. Clin Vaccine Immunol. 2010;17(4):631-7. doi: 10.1128/CVI.00511-09
DeGiorgio C, Pietsch-Escueta S, Tsang V, et al. Sero-prevalence of Taenia solium cysticercosis and Taenia solium taeniasis in California, USA. Acta Neurolo Scandi. 2005:111(2):84–88. Abstract. Accessed October 10, 2014.
Disability
Horner-Johnson W, Lindner S, Levy A, et al. Time trends in emergency department use among adults with intellectual and developmental disabilities. Disabil and Health J. 2021;6:101225.
Lauer E, Lindgren S, Momany E, et al. Health service utilization patterns among Medicaid-insured adults with intellectual and developmental disabilities: implications for access needs in outpatient community-based medical services. J Ambul Care Manage. 2021;44(2):138-147. doi: 10.1097/JAC.0000000000000373
Pastor PN, Reuben CA, Kobau R, Helmers SL, Lukacs S. Functional difficulties and school limitations of children with epilepsy: findings from the 2009–2010 National Survey of Children with Special Health Care Needs. Disabil Health J. 2015. doi: 10.1016/j.dhjo.2014.09.002
Centers for Disease Control and Prevention. Prevalence of epilepsy and health-related quality of life and disability among adults with epilepsy – South Carolina, 2003 and 2004. MMWR. 2005;54(42):1080-1082. html. Accessed October 10, 2014.
Epidemiology and Surveillance
Sapkota S, Caruso E, Kobau R, et al. Seizure- or epilepsy-related emergency department visits before and during the COVID-19 pandemic—United States, 2019-2021. MMWR Morb Mortal Wkly Rep. 71:703-708. doi: http://dx.doi.org/10.15585/mmwr.mm7121a2
Bensken WP, Navale SM, Andrew AS, Jobst BC, Sajatovic M, Koroukian SM. Delays and disparities in diagnosis for adults with epilepsy: Findings from U.S. Medicaid data. Epilepsy Res. 2020;166:106406. doi: 10.1016/j.eplepsyres.2020.106406
Burns KM, Cottengim C, Dykstra H, et al. Epidemiology of sudden death in a population-based study of infants and children. Sudden Death in the Young Case Registry. J Pediatr. 2020;2:100023. doi: 10.1016/j.ympdx.2020.100023
Tian N, Croft JB, Kobau R, Zack MM, Greenlund KJ. CDC-supported epilepsy surveillance and epidemiologic studies: A review of progress since 1994. Epilepsy Behav. 2020;109:107123. doi: 10.1016/j.yebeh.2020.107123
Bensken WP, Fernandez-Baca Vaca G, Jobst BC, et al. Burden of chronic and acute conditions and symptoms in people with epilepsy. Neurology. 2021;97(24):e2368-e2380.
Sajatovic, M., Wilson, B., Shegog, R., et al. The Managing Epilepsy Well (MEW) Network Database: lessons learned in refining and implementing an integrated data tool in service of a national U.S. research collaborative. Epilepsy Behav. 2021;115:107650. doi: 10.1016/j.yebeh.2020.107650
Tian N, Wheaton AG, Zack M, Croft JB, Greenlund KJ. Sleep duration and quality among U.S. adults with epilepsy: National Health Interview Survey 2013, 2015, and 2017. Epilepsy Behav. 2021;122:108194. doi: 10.1016/j.yebeh.2021.108194
Grinspan ZM, Tian N, Yozawitz EG, et al. Common terms for rare epilepsies: Synonyms, associated terms, and links to structured vocabularies. Epilepsia Open. 2018 ;3(1):91-97. doi: 10.1002/epi4.12095
Kobau R, Sapkota S, Koh HK, Zack MM. National declines in the percentages of uninsured among adults aged 18-64 years with active epilepsy, 2010 and 2013 to 2015 and 2017-U.S. National Health Interview Survey. Epilepsy Behav. 2019; 97:316-318.doi: 10.1016/j.yebeh.2019.05.022
Tian N, Croft JB, Kobau R, Zack MM, Greenlund KJ. CDC-supported epilepsy surveillance and epidemiologic studies: A review of progress since 1994. Epilepsy Behav. 2020;109:107123. doi: 10.1016/j.yebeh.2020.107123
Tian N, Zack M, Wheaton AG, Greenlund KJ, Croft JB. Epilepsy and chronic obstructive pulmonary disease among U.S. adults: National Health Interview Survey 2013, 2015, and 2017. Epilepsy Behav. 2020; 110:107175. doi: 10.1016/j.yebeh.2020.107175
Burns KM, Cottengim C, Dykstra H, et al. Epidemiology of Sudden Death in a Population-Based Study of Infants and Children. Sudden Death in the Young Case Registry. J Pediatr X. 2020; 2:100023. doi: 10.1016/j.ympdx.2020.100023.
Bensken WP, Navale SM, Andrew AS, Jobst BC, Sajatovic M, Koroukian SM. Delays and disparities in diagnosis for adults with epilepsy: Findings from U.S. Medicaid data. Epilepsy Res. 2020; 166:106406. doi: 10.1016/j.eplepsyres.2020.106406
Sapkota S, Kobau R, Croft JB, King BA, Thomas C, Zack MM. Prevalence and Trends in Cigarette Smoking Among Adults with Epilepsy — United States, 2010–2017. MMWR Morb Mortal Wkly Rep 2020;69:1792–1796.
Wilson DA, Wannamaker BB, Malek AM, Selassie AW. Myocardial infarction after epilepsy onset: A population-based retrospective cohort study. Epilepsy Behav. 2018;88:181-188. doi: 10.1016/j.yebeh.2018.09.009
Sapkota S, Kobau R, Pastula DM, Zack MM. Close to 1 million US adults aged 55 years or older have active epilepsy- National Health Interview Survey, 2010, 2013, and 2015. Epilepsy Behav. [published online August 2, 2018] doi: 10.1016/j.yebeh.2018.06.030
Zack M, Luncheon C. Adults with an epilepsy history, notably those 45–64 years old or at the lowest income levels, more often report heart disease than adults without an epilepsy history. Epilepsy Behav. 2018;86:208-210. doi: 10.1016/j.yebeh.2018.05.021
Tian N, Boring M, Kobau R, Zack M, Croft J. Active Epilepsy and Seizure Control in Adults — United States, 2013 and 2015. MMWR. 2018;67(15):437-442. doi: 10.15585/mmwr.mm6715a1. html
Zack M, Luncheon C. Adults with an epilepsy history, especially those 45 years or older, those with lower family incomes, and those with a history of hypertension, report a history of stroke five times as often as adults without such a history-2010, 2013, and 2015 U.S. National Health Interview Survey. Epilepsy Behav. 2018;83:236-238. doi: 10.1016/j.yebeh.2018.02.028
Middleton O, Atherton D, Bundock E, et al. National Association of Medical Examiners Position Paper: Recommendations for the Investigation and Certification of Deaths in People with Epilepsy. Academic Forensic Pathology. 2018; 8(1): 119-135. doi: 10.23907/2018.009
Sapkota S, Kobau R, Pastula DM, Zack MM. People with epilepsy are diagnosed most often with unspecified epilepsy, followed by focal epilepsy, generalized convulsive epilepsy, and generalized nonconvulsive epilepsy—US MarketScan data, 2010–2015. Epilepsy Behav. 2018;79:244-246. doi: 10.1016/j.yebeh.2017.11.004
Pessoa A, van der Linden V, Yeargin-Allsopp M, et al. Motor abnormalities and epilepsy in infants and children with evidence of congenital Zika virus infection. Pediatrics. 2018;141(s2):1-13. doi: 10.1542/peds.2017-2038F
Ip Q, Malone DC, Chong J, Harris RB, Labiner DM. An update on the prevalence and incidence of epilepsy among older adults. Epilepsy Research. 2018;139:107-112. doi: 10.1016/j.eplepsyres.2017.11.022
Zack MM, Kobau R. National and state estimates of the numbers of adults and children with active epilepsy — United States, 2015. MMWR. 2017;66:821–825. doi: 10.15585/mmwr.mm6631a1. html
Pastula DM, Yeargin-Allsopp M, Kobau R. Enhanced Epilepsy Surveillance and Awareness in the Age of Zika. JAMA Neurol. 2017;74(6):631-632. doi:10.1001/jamaneurol.2017.0215
Greenlund SF, Croft JB, Kobau R. Epilepsy by the Numbers: Epilepsy deaths by age, race/ethnicity, and gender in the United States significantly increased from 2005 to 2014. Epilepsy Behav. 2017;69:28-30.
Burns KM, Bienemann L, Camperlengo L, et al. The Sudden Death in the Young Case Registry: Collaborating to understand and reduce mortality. Pediatrics. 2017;139(3):e20162757.
Pugh MJ, Van Cott AC, Amuan M, et al. Epilepsy Among Iraq and Afghanistan War Veterans — United States, 2002–2015. MMWR. 2016;65:1224–1227. doi: 10.15585/mmwr.mm6544a5
Centers for Disease Control and Prevention Epilepsy Program. Nearly one in five adults with active epilepsy lives alone based on findings from the 2010 and 2013 US national health interview surveys. Epilepsy Behav. 2015;51:259–260. doi:10.1016/j.yebeh.2015.07.034
Tian N, Cui W, Zack MM, Kobau R, Fowler KA, Hesdorffer DC. Suicide among people with epilepsy: A population-based analysis of data from the U.S. National Violent Death Reporting System, 17 states, 2003-2011. Epilepsy Behav. 2016;61:210-217. doi: 10.1016/j.yebeh.2016.05.028
Centers for Disease Control and Prevention Epilepsy Program. More than 40% of those not taking antiseizure medication with recent seizures reported that epilepsy or its treatment interfered with their recent activities, 2010 and 2013 US National Health Interview Surveys. Epilepsy Behav. 2016;62:129–131. doi:10.1016/j.yebeh.2016.06.013
Garcia HH, Gonzalez AE, Tsang VCW, et al. Elimination of Taenia solium Transmission in Northern Peru. N Engl J Med. 2016;374:2335-2344. doi: 10.1056/NEJMoa1515520
Centers for Disease Control and Prevention Epilepsy Program. About one-half of adults with active epilepsy and seizures have annual family incomes under $25,000: The 2010 and 2013 US National Health Interview Survey. Epilepsy Behav. 2016;58(5):33–34. doi: 10.1016/j.yebeh.2016.02.024
Wilson DA, Malek AM, Wagner JL, Wannamaker BB, Selassie AW. Mortality in in people with epilepsy: A statewide retrospective cohort study. Epilepsy Res. 2016;122:7-14. doi: 10.1016/j.eplepsyres.2016.01.008
Wannamaker BB, Wilson DA, Malek AM, Selassie AW. Stroke after adult-onset epilepsy: a population-based retrospective cohort study. Epilepsy Behav. 2015;43:93-9. doi: 10.1016/j.yebeh.2014.11.028
Hawley SR, Ablah E, Hesdorffer D, et al. Prevalence of pediatric epilepsy in low-income rural Midwestern counties. Epilepsy Behav. 2015;53:190-6. doi: 10.1016/j.yebeh.2015.09.014
Tang DH, Malone DC, Warholak TL, et al. Prevalence and Incidence of Epilepsy in an Elderly and Low-Income Population in the United States. J Clin Neurol. 2015;11(3):252-61. doi: dx.doi.org/10.3988/jcn.2015.11.3.252
Cui W, Kobau R, Zack MM, Helmers S. Marshalyn Yeargin-Allsopp M. Seizures in children and adolescents aged 6–17 years – United States, 2010–2014. MMWR. 2015;64(43):1209-14. html. Accessed January 14, 2016.
LaFrance W, Ranieri R, Bamps Y, et al. Comparison of common data elements from the Managing Epilepsy Well (MEW) Network integrated database and a well-characterized sample with nonepileptic seizures. Epilepsy Behav. 2015;45:136-41. doi:10.1016/j.yebeh.2015.02.021.
Selassie AW, Wilson DA, Wagner JL, et al. Population-based comparative analysis of risk of death in children and adolescents with epilepsy and migraine. Epilepsia. 2015;56(12):1957-65. doi: 10.1111/epi.13219.
Sahoo S, Zhang GQ, Bamps Y, et al. Managing Information Well: Towards an Ontology-driven Informatics Platform for Data Sharing and Secondary Use in Epilepsy Self-Management Research Centers. Health Informatics Journal. 2015, ePub available before print. doi: 10.1177/1460458215572924.
Thurman DJ, Kobau R, Luo Y, Helmers S, Zack MM. Health-care access among adults with epilepsy: The U.S. National Health Interview Survey, 2010 and 2013. Epilepsy Behav. 2015, ePub before print. doi: 10.1016/j.yebeh.2015.10.028.
Tian N, Shaw EC, Zack MM, Kobau R, Dykstra H, Covington TM. Cause-specific mortality among Children and Young Adults with Epilepsy: Results from the U.S. National Child Death Review Case Reporting System. Epilepsy Behav. 2015, ePub before print. doi: 10.1016/j.yebeh.2015.02.006
Selassie A, Wilson D, Malek A, et al. Premature deaths among children with epilepsy — South Carolina, 2000–2011. MMWR. 2014:63(44);989-94. html. Accessed December 23, 2014. [PDF 955K].
Kobau R, Cui W, Kadima N, Zack MM, et al. Tracking psychosocial health in adults with epilepsy—estimates from the 2010 National Health Interview Survey. Epilepsy Behav. 2014;41:66-73. doi: 10.1016/j.yebeh.2014.08.002
Thurman DJ, Beghi E, Begley CE, et al. ILAE Commission on Epidemiology. Standards for epidemiologic studies and surveillance of epilepsy. Epilepsia. 2012;52(7)437-43. doi: 10.1111/j.1528-1167.2011.03121.x.
Kobau R, Zahran H, Thurman DJ, et al. Epilepsy surveillance among adults-19 states, Behavioral Risk Factor Surveillance System, 2005. MMWR. 2008;57(No.SS-6):1-20. html. PDF [900KB]. [View the errata for this article here]. 2008;57(32):876. Accessed October 10, 2014.
Parko K, Thurman DJ. Prevalence of epilepsy and seizures in the Navajo Nation 1998–2002. Epilepsia. 2009;50(10):2180-5. doi: 10.1111/j.1528-1167.2009.02140.x.
Benn EK, Hauser WA, Shih T, et al. “Underlying cause of death in incident unprovoked seizures in the urban community of Northern Manhattan, New York City.” Epilepsia 2009;50(10):2296-300. doi: 10.1111/j.1528-1167.2009.02133.x
Benn EK, Hauser WA, Shih T, et al. Estimating the incidence of first unprovoked seizure and newly diagnosed epilepsy in the low-income urban community of Northern Manhattan, New York City. Epilepsia. 2008;49(8):1431-1439. doi: 10.1111/j.1528-1167.2008.01564.x
Kobau R, Zahran H, Thurman DJ, et al. Epilepsy surveillance among adults-19 states, Behavioral Risk Factor Surveillance System, 2005. MMWR. 2008;57(No.SS-6):1-20. html. PDF [900KB]. [View the errata for this article here]. 2008;57(32):876. Accessed October 10, 2014.
Hirtz D, Thurman DJ, Gwinn-Hardy K, et al. How common are the “common” neurological disorders? Neurology. 2007;68(5):326–37. Abstract. Accessed October 10, 2014.
Kelvin EA, Hesdorffer DC, Bagiella E, et al. Prevalence of self-reported epilepsy in a multiracial and multiethnic community in New York City. Epilepsy Res. 2007;77(2-3):141-150. Abstract.Accessed October 10, 2014.
Kobau R, Gilliam F, Thurman DJ. Prevalence of self-reported epilepsy or seizure disorder, and its associations with depression and anxiety—results from the 2004 HealthStyles Survey. Epilepsia 2006. Abstract. Accessed October 10, 2014.
Holden EW, Grossman E, Nguyen HT, et al. Developing a computer algorithm to identify epilepsy cases in managed care organizations. Dis Manag. 2005:8(1):1-14. Abstract. Accessed October 10, 2014.
Holden EW, Nguyen HT, Grossman E, et al. Estimating prevalence, incidence, and disease-related mortality for patients with epilepsy in managed care organizations. Epilepsia. 2005;46:311-319. Abstract. Accessed October 10, 2014.
Kobau R, DiIiorio CA, Price PH, et al. Prevalence of epilepsy and health status of adults with epilepsy in Georgia and Tennessee: Behavioral Risk Factor Surveillance System, 2002. Epilepsy Behav. 2004;5:358–366. Abstract. Accessed October 10, 2014.
Centers for Disease Control and Prevention. Prevalence of self-reported epilepsy United States, 1986-1990. MMWR. 1994:43:810-811. html. Accessed October 10, 2014.
Centers for Disease Control and Prevention. Hospitalization for epilepsy: United States, 1988-1992. MMWR. 1994:44(43):818-823. html. Accessed October 10, 2014.
Health-Related Quality of Life
Kobau R, Cui W, Zack M. Adults with an epilepsy history fare significantly worse on positive mental and physical health than adults with other common chronic conditions—Estimates from the 2010 National Health Interview Survey and Patient Reported Outcome Measurement System (PROMIS) Global Health Scale. Epilepsy Behavior. 2017;72:182-184. doi: 10.1016/j.yebeh.2017.04.047
Manacheril R, Faheem U, Labiner D, et al. Psychosocial Impact of Epilepsy in Older Adults. Healthcare. 2015;3(4):1271-83. doi: 10.3390/healthcare3041271
Kobau R, Luncheon C, Zack MM, Shegog R, Price PH. Satisfaction with life domains in people with epilepsy. Epilepsy Behav. 2012;25(4):546-51. doi: 10.1016/j.yebeh.2012.09.013
Kobau R, Zahran H, Grant D, et al. Prevalence of active epilepsy and health-related quality of life among adults with self-reported epilepsy in California: California Health Interview Survey, 2003. Epilepsia. 2007:48:1904-1913. Abstract. Accessed October 10, 2014.
Centers for Disease Control and Prevention. Prevalence of epilepsy and health-related quality of life and disability among adults with epilepsy – South Carolina, 2003 and 2004. MMWR. 2005;54(42):1080-1082. html. Accessed October 10, 2014.
Martin R, Vogtle L, Gilliam F, Faught E. Health-related quality of life in seniors: What we know from clinical trials and directions for future research. Epilepsy Behav. 2003:4:626–634. Abstract. Accessed October 10, 2014.
Centers for Disease Control and Prevention. Prevalence. Health-related quality of life among persons with epilepsy Texas, 1998. MMWR. 2001;50(02):24-26,35. html. Accessed October 10, 2014.
Knowledge, Attitudes and Stigma
Sajatovic M, Herrmann LK, Van Doren JR, et al. A randomized prospective pilot trial of Web-delivered epilepsy stigma reduction communications in young adults. Epilepsia. 2017;58(11):1946-1954. doi: 10.1111/epi.13911
Hermann LK, Welter E, Berg AT, Perzynski AT, VanDoren JR, Sajatovic M. Epilepsy misconceptions and stigma reduction: Current status in Western countries. Epilepsy Behav. 2016;60(7):165–173. doi: 10.1016/j.yebeh.2016.04.003
Buelow J, Gattone P, Giles W, Kobau R. Epilepsy Foundation public awareness campaigns, 2001 – 2013. Epilepsy Behav. 2015, ePub available before print. doi:10.1016/j.yebeh.2014.12.045.
Cui W, Kobau R, Zack MM, Buelow JM, Austin JK. Recent changes in attitudes of US adults toward people withepilepsy — Results from the 2005 SummerStyles and 2013 FallStyles surveys. Epilepsy Behav. 2015;52:108-18. doi:10.1016/j.yebeh.2015.08.040
Kobau R, DiIorio C, Thompson N, St. Louis E, Bamps Y. Epilepsy, comorbidities, and consequences: implications for understanding and combating stigma. St Louis, E, Ficker D, O’Brien, T eds. Epilepsy and the Interictal State: Co-morbidities and Quality of Life. Wiley- Blackwell. 2015. 15-28. Print.
Price P, Kobau R, Austin J, Buelow J, Lowenberg K. Improving understanding, promoting social inclusion and fostering empowerment related to epilepsy: Epilepsy Foundation public awareness campaigns – 2001 through 2013. Epilepsy Behav. 2015;44;239-44. doi: 10.1016/j.yebeh.2014.12.044
Leaffer EB, Hesdorffer D, Begley C. Psychosocial and sociodemographic associates of felt stigma in epilepsy. Epilepsy Behav. 2014;37:104-9. doi: 10.1016/j.yebeh.2014.06.006
Leaffer EB, Jacoby A, Benn E, et al. Associates of stigma in an incident epilepsy population from northern Manhattan, New York City. Epilepsy Behav. 2011;21(1):60-4. doi: 10.1016/j.yebeh.2011.03.007
Smith G, Ferguson PL, Saunders LL, Wagner JL, Wannamaker BB, Selassie AW. Psychosocial factors associated with stigma in adults with epilepsy. Epilepsy Behav. 2009;16(3):484-490. doi: 10.1016/j.yebeh.2009.08.028
Centers for Disease Control and Prevention. Announcement: National epilepsy awareness month — November 2009. MMWR. 2009;58(42):1183. html. Accessed October 10, 2014
Vogtle LK, Martin RC, Foushee HR, Faught RE. A comparison of physicians’ attitudes and beliefs regarding driving for persons with epilepsy. Epilepsy Behav. 2007;10(1) 55–62. Abstract. Accessed October 10, 2014.
Kobau R, DiIorio CA, Anderson LA, Price PH. Further validation and reliability testing of the Attitudes and Beliefs about Living with Epilepsy (ABLE) components of the CDC Epilepsy Program Instrument on Stigma. Epilepsy Behav. 2006;8(3):552–559. Epub 2006. Abstract. Accessed October 10, 2014.
Sirven JI, Lopez RA, Vazquez B, Van Haverbeke P. Que es la epilepsia? Attitudes and knowledge of epilepsy by Spanish-speaking adults in the United States. Epilepsy Behav. 2005;7:259–265. Abstract. Accessed October 10, 2014.
DiIorio CA, Kobau R, Holden EW, Berkowitz JM, et al. Developing a measure to assess attitudes toward epilepsy in the US population. Epilepsy Behav. 2004;5:965–975. Abstract. Accessed October 10, 2014.
Kobau R, DiIiorio CA, Price PH, et al. Prevalence of epilepsy and health status of adults with epilepsy in Georgia and Tennessee: Behavioral Risk Factor Surveillance System, 2002. Epilepsy Behav. 2004;5:358–366. Abstract. Accessed October 10, 2014.
Mental Health
Tian N, Zack MM, Hesdorffer DC. Timing of suicide in people with epilepsy: A population-based study from 18 states of the United States, 2003-2014. Epilepsy Behav. 2019; 99:106421. doi: 10.1016/j.yebeh.2019.07.022
Kobau R, Sapkota S, Zack MM. Serious psychological distress among adults with active epilepsy in all racial/ethnic groups and among adults with inactive epilepsy in non-Hispanic whites is significantly higher than among adults without epilepsy-U.S. National Health Interview Survey, 2010, 2013, 2015, and 2017. Epilepsy Behav. 2019; 95:192-194. doi: 10.1016/j.yebeh.2019.01.043
Kobau R, Manderscheid R, Owens S, LaFrance WC Jr, Sajatovic M. Bridging the divide between epilepsy and mental health to drive solutions. Epilepsy Behav. 2019; 101(Pt A):106576. doi: 10.1016/j.yebeh.2019.106576
Sajatovic M, Needham K, Colón-Zimmermann K, et al. The Community-targeted Self-management of Epilepsy and Mental Illness (C-TIME) initiative: A research, community, and healthcare administration partnership to reduce epilepsy burden. Epilepsy Behav. 2018;89:175-180. doi: 10.1016/j.yebeh.2018.10.004
Jamal-Omidi S, Collins C, Fulchiero E, et al. Assessing depression severity with a self-rated vs. rater-administered instrument in patients with epilepsy. Epilepsy Behav. 2018;85:52-57. doi: 10.1016/j.yebeh.2018.05.018
Baldin E, Hauser WA, Pack A, Hesdorffer DC. Stress is associated with an increased risk of recurrent seizures in adults. Epilepsia. 2017;58(6):1037-1046. doi: 10.1111/epi.13741
Thompson, NJ, Patel A, Selwa LM, et al. The efficacy of Project UPLIFT for prevention: Distance delivery of mindfulness-based depression prevention. J Consult Clin Psych. 2015;83(2):304-13.
Walker ER, Engelhard Jr. G, Thompson NJ. Using Rasch measurement theory to assess three depression scales among adults with epilepsy. Seizure. 2012;21(6):437-443. doi: 10.1016/j.seizure.2012.04.009
Chaytor N, Ciechanowski P, Miller JW, Fraser R, Russo J, Unutzer J, Gilliam F. Long-term outcomes from the PEARLS randomized trial for the treatment of depression in patients with epilepsy. Epilepsy Behav. 2011;20(3):545-549. doi: 10.1016/j.yebeh.2011.01.017
Ciechanowski P, Chaytor N, Miller J, Fraser R, Russo J, Unutzer J, Gilliam F. PEARLS depression treatment for individuals with epilepsy: a randomized controlled trial. Epilepsy Behav. 2010;19(3):225-231. doi: 10.1016/j.yebeh.2010.06.003
Thompson NJ, Walker ER, Obolensky N, Winning A, Barmon C, DiIorio C, Compton M. Distance Delivery of Mindfulness-based Cognitive Therapy for Depression: Project UPLIFT. Epilepsy Behav. 2010;19(3):247-254. doi: 10.1016/j.yebeh.2010.07.031
Walker ER, Obolensky N, Dini S, Thompson, NJ. Formative and process evaluations of a CBT and mindfulness intervention for people with epilepsy and depression. Epilepsy Behav. 2010;19(3):239-246. doi: 10.1016/j.yebeh.2010.07.032
Kobau R, Gilliam F, Thurman DJ. Prevalence of self-reported epilepsy or seizure disorder, and its associations with depression and anxiety—results from the 2004 HealthStyles Survey. Epilepsia 2006. Abstract. Accessed October 10, 2014.
Strine TW, Kobau R, Chapman DP, Thurman DJ, Price PH, Balluz L. Psychological distress, comorbidities, and health behaviors among US adults with seizures: results from the 2002 National Health Interview Survey. Epilepsia. 2005:46(7):1133–1139. Abstract. Accessed October 10, 2014.
Thompson AW, Kobau R, Park R, Grant D. Epilepsy care and mental health care for people with epilepsy: California Health Interview Survey, 2005. Prev Chronic Dis. 2012;9:110140. http://dx.doi.org/10.5888/pcd9.110140. Accessed October 10, 2014.
Ciechanowski P, Wagner E, Schmaling K, et al. Community-integrated home-based depression treatment in older adults: a randomized controlled trial. JAMA. 2004;291(13):1569-77. Abstract. html. pdf [PDF 190K] Accessed October 10, 2014.
National Efforts
Koh HK, Kobau R, Whittemore VH, et al. Toward an integrated public health approach for epilepsy in the 21st century. Prev Chronic Dis. 2014;11:E146.
Austin JK, Carr DA, Hermann BP. Living Well II: a review of progress since 2003. Epilepsy Behav. 2006;9(3):386-93. Abstract. Accessed October 10, 2014.
Quality of Care
Mazanec MT, Lu E, Sajatovic M, Jobst BC. A systematic literature review of recommendations for referral to specialty care for patients with epilepsy. Epilepsy Behav 2021;116: 107748, doi: https://doi.org/10.1016/j.yebeh.2020.107748
Quon RJ, Mazanec MT, Schmidt SS, et al. Antiepileptic drug effects on subjective and objective cognition. Epilepsy Behav. 2020;104(Pt A):106906. doi: 10.1016/j.yebeh.2020.106906
Bensken WP, Ciesielski TH, Williams SM, Stange KC, Sajatovic M, Koroukian SM. Inconsistent Medicaid coverage is associated with negative health events for people with epilepsy. J Health Care Poor Underserved. 2022;33(2):1036-1053. doi: 10.1353/hpu.2022.0079
Bensken W, Suparna N, Angeline A, Jobst B, Sajatovic M, Koroukian S. Markers of quality care for newly diagnosed people with epilepsy on Medicaid. Med Care. 2021;59(7):588-596. doi:10.1097/MLR.0000000000001541
Kobau R, Zack MM, Sapkota S, Sajatovic M, Kiriakopoulos E. When and why US primary care providers do and do not refer their patients with new-onset seizures or existing epilepsy or seizure disorders to neurologists-2018 DocStyles. Epilepsy Behav. 2021;125:108385.
Bokhour BG, Pugh MJ, Rao JK, et al. Identifying patient-centered indicators for quality epilepsy care. Med Care Res Rev. 2009;66(2):147-166. doi: 10.1177/1077558708327174.
Pugh MJ, Berlowitz DR, Montouris G, Bokhour B, Cramer JA, et al. What constitutes high quality of care for adults with epilepsy? Neurology. 2007;69:2020–2027. abstract Accessed October 10, 2014.
Caplin DA, Rao JK, Filloux F, Bale JF, van Orman C. Development of performance indicators for the primary care management of pediatric epilepsy: expert consensus recommendations based on the available evidence. Epilepsia 2006;47:2011–2019. Abstract. Accessed October 10, 2014.
Self-management
Quon R, Andrew A, Schmidt S, et al. Self-management practices associated with quality of life for adults with epilepsy. J Neurol. 2019;266(11):2821-2828. doi: 10.1007/s00415-019-09503-w
Streltzov NA, Schmidt SS, Schommer LM, et al. Effectiveness of a self-management program to improve cognition and quality of life in epilepsy: a pragmatic, randomized, multicenter trial. Neurology. 2022; 98(21):e2174-e2184. doi: 10.1212/WNL.0000000000200346
Escoffery C, Haardoerfer R, Bamps Y, et al. Reduction of the Adult Epilepsy Self-Management Measure Instrument (AESMMI). Epilepsy Behav. 2022;131(Pt A):108692. doi:10.1016/j.yebeh.2022.108692
Briggs FBS, Wilson BK, Pyatka N, Colon-Zimmermann K, Sajatovic MM. Effects of a remotely delivered group-format epilepsy self-management program on adverse health outcomes in vulnerable people with epilepsy: A causal mediation analysis. Epilepsy Res. doi: 10.1016/j.eplepsyres.2020.106303
Escoffery, C., Johnson, L., McGee, R., et al., Epilepsy self-management behaviors among African Americans with epilepsy. Epilepsy Behav. 2020;109 (107098). doi: 10.1016/j.yebeh.2020.107098
Johnson EK, Fraser RT, Lashley S, et al. Program of Active Consumer Engagement in Self-Management in Epilepsy: Replication and extension of a self-management randomized controlled trial. Epilepsia. 2020;61(6):1129-1141. doi: 10.1111/epi.16530
Shegog R, Begley C, Chong J, et al. MINDSET: Clinic-based decision support demonstrates longitudinal efficacy for increased epilepsy self-management adherence among Spanish speaking patients. Epilepsy Behav. 2020;113:107552. doi: 10.1016/j.yebeh.2020.107552
Sudhakar S, Aebi M, Burant C, et al. Health literacy and education level correlates of participation and outcome in a remotely delivered epilepsy self-management program. Epilepsy Behav. 2020;107:107026. doi:10.1016/j.yebeh.2020.107026
Blixen C, Ghearing G, Wade O, Colon-Zimmerman K, Tyrrell M, Sajatovic M. Engaging stakeholders in the refinement of an evidence-based remotely delivered epilepsy self-management program for rural populations. Epilepsy Behav. 2021;118:107942. doi: 10.1016/j.yebeh.2021.107942
Moncrief GG, Aita SL, Tyson BT, et al. Self-rated executive dysfunction in adults with epilepsy and effects of a cognitive-behavioral intervention (HOBSCOTCH). Epilepsy Behav. 2021;121(Pt A):108042. doi: 10.1016/j.yebeh.2021.108042
Kottapalli I, Needham K, Colon-Zimmermann K, et al. A community-targeted implementation of Self-MAnagement for people with epilepsy and a histoRy of negative health evenTs (SMART): A research and community partnership to reduce epilepsy burden. Epilepsy Behav. 2022;108440. doi: 10.1016/j.yebeh.2021.108440
Chen E, Sajatovic M, Liu H, Bukach A, Tatsuoka C, Welter E, Schmidt SS, Bamps YA, Stoll SC, Spruill TM, Friedman D, Begley CE, Shegog R, Fraser RT, Johnson EK, Jobst BC. Demographic and clinical correlates of seizure frequency: Findings from the Managing Epilepsy Well Network Database. J Clin Neurol. 2018 ;14(2):206-211. doi: 10.3988/jcn.2018.14.2.206
Khalid Z, Momotaz H, Briggs F, Cassidy KA, Chaytor NS, Fraser RT, Janevic MR, Jobst B, Johnson EK, Scal P, Spruill TM, Wilson BK, Sajatovic M. Depressive Symptoms in Older versus Younger People with Epilepsy: Findings from an integrated epilepsy self-management clinical research dataset. J Multidiscip Healthc. 2019;12:981-988. doi: 10.2147/JMDH.S227184
McGee RE, Sajatovic M, Quarells RC, Johnson EK, Liu H, Spruill TM, Fraser RT, Janevic M, Escoffery C, Thompson NJ. Depression and quality of life among African Americans with epilepsy: Findings from the Managing Epilepsy Well (MEW) Network integrated database. Epilepsy Behav. 2019; 94:301-306. doi: 10.1016/j.yebeh.2019.02.026
Sajatovic M, Johnson EK, Fraser RT, Cassidy KA, Liu H, Pandey DK, Quarells RC, Scal P, Schmidt S, Shegog R, Spruill TM, Janevic MR, Tatsuoka C, Jobst BC. Self-management for adults with epilepsy: Aggregate Managing Epilepsy Well Network findings on depressive symptoms. Epilepsia. 2019; 60(9):1921-1931. doi: 10.1111/epi.16322. Epub 2019 Sep 5.
Thompson NJ, McGee RE, Garcia-Williams A, Selwa LM, Stoll SC, Johnson EK, Fraser RT. The impact of a depression self-management intervention on seizure activity. Epilepsy Behav. 2020; 103(Pt A):106504. doi: 10.1016/j.yebeh.2019.106504
Johnson EK, Fraser RT, Lashley S, Barber J, Brandling-Bennett EM, Vossler DG, Miller JW, Caylor L, Warheit-Niemi T. Program of Active Consumer Engagement in Self-Management in Epilepsy: Replication and extension of a self-management randomized controlled trial. Epilepsia. 2020; 61(6):1129-1141.doi: 10.1111/epi.16530
Ross S, Charles B, Jenny C, Refugio S, Robert A, Kimberly M, Omar R, Noelia H, David L. MINDSET: Clinic-based decision support demonstrates longitudinal efficacy for increased epilepsy self-management adherence among Spanish speaking patients. Epilepsy & Behavior. 2020, 107552.
Sajatovic M, Needham K, Colón-Zimmermann K, et al. The Community-targeted Self-management of Epilepsy and Mental Illness (C-TIME) initiative: A research, community, and healthcare administration partnership to reduce epilepsy burden. Epilepsy Behav. 2018;89:175-180. doi: 10.1016/j.yebeh.2018.10.004
Begley C, Chong J, Shegog R, et al. MINDSET: Clinical feasibility of utilizing the revised epilepsy self-management tool for Spanish speaking patients. Epilepsy Behav. 2018;88:218-226. doi: 10.1016/j.yebeh.2018.09.021
Begley C, Shegog R, Liu H, et al. Correlates of epilepsy self-management in MEW Network participants: From the Centers for Disease Control and Prevention Managing Epilepsy Well Network. Epilepsy Behav. 2018;85:243-347. doi: 10.1016/j.yebeh.2018.04.011
Jamal-Omidi S, Collins C, Fulchiero E, et al. Assessing depression severity with a self-rated vs. rater-administered instrument in patients with epilepsy. Epilepsy Behav. 2018;85:52-57. doi: 10.1016/j.yebeh.2018.05.018
Kumar N, Colon-Zimmermann K, Fuentes-Casiano E, et al. Clinical correlates of negative health events in a research sample with epilepsy. Epilepsy Behav. 2018;79:225-229. doi: 10.1016/j.yebeh.2017.11.037
Shegog R, Begley CE. Clinic-based mobile health decision support to enhance adult epilepsy self-management: An intervention mapping approach. Front Public Health. 2017;5:256. doi: 10.3389/fpubh.2017.00256
Friedman D, Spruill TM, Liu H. Depressive symptoms and suicidality among individuals with epilepsy enrolled in self-management studies: Results from the US Centers for Disease Control and Prevention Managing Epilepsy Well (MEW) Network. Epilepsy Behav. [published online August 13, 2018] doi: 10.1016/j.yebeh.2018.06.024
Sajatovic M, Colon-Zimmermann K, Kahriman M, et al. A 6‐month prospective randomized controlled trial of remotely delivered group format epilepsy self‐management versus waitlist control for high‐risk people with epilepsy. Epilepsia. 2018; 00: 1-12. doi: 10.1111/epi.14527
Tian N, Boring M, Kobau R, Zack M, Croft J. Active Epilepsy and Seizure Control in Adults — United States, 2013 and 2015. MMWR. 2018;67(15):437-442.doi: 10.15585/mmwr.mm6715a1. html
Escoffery C, McGee R, Bidwell J, et al. A review of mobile apps for epilepsy self-management. Epilepsy Behav. 2018; 81: 62-69. doi: 10.1016/j.yebeh.2017.12.010
Kumar N, Colon-Zimmermann K, Fuentes-Casiano E, et al. Clinical correlates of negative health events in a research sample with epilepsy. Epilepsy Behavior. 2018;79:225-229. doi: https://doi.org/10.1016/j.yebeh.2017.11.037
Sajatovic M, Tatsuoka C, Welter E, et al. Correlates of quality of life among individuals with epilepsy enrolled in self-management research. Epilepsy Behav. 2017;69:177–180. doi: 10.1016/j.yebeh.2016.12.005
Sajatovic M, Jobst BC, Shegog R, et al. The Managing Epilepsy Well Network: Advancing epilepsy self-management. Am J Prev Med. 2017;52(3S3):S241–S245.
Helmers SL, Kobau R, Sajatovic M, et al. Self-management in epilepsy: Why and how you should incorporate self-management in your practice. Epilepsy Behav. 2016.
Sajatovic M, Tatsuoka C, Welter E, et al. Targeted Self-Management of Epilepsy and Mental Illness for individuals with epilepsy and psychiatric comorbidity. Epilepsy Behav. 2016;64(Pt A):152-9. doi: 10.1016/j.yebeh.2016.08.012
Sahoo SS, Ramesh P, Welter E, Bukach A, Valdeza J, Tatsuoka C, Bamps Y, Stoll S, Jobst BC, Sajatovic M. Insight: An ontology-based integrated database and analysis platform for epilepsy self-management research. Int J Med Inform. 2016;94:21-30. doi:10.1016/j.ijmedinf.2016.06.009
Escoffery C, McGee RE, Bamps Y, Helmers SL. Differences in epilepsy self-management behaviors among young and older adults. Austin J Neurol Disord Epilepsy. 2016;3(1): 1015.
Caller TA, Ferguson RJ, Roth RM, Secore KL, Alexandre FP, Zhao W, et al. A cognitive behavioral intervention (HOBSCOTCH) improves quality of life and attention in epilepsy. Epilepsy Behav. 2016;57(Pt A):111-7. doi: 10.1016/j.yebeh.2016.01.024
Centers For Disease Control And Prevention Epilepsy Program. Internet use and looking up information online in adults with epilepsy varies by epilepsy status – 2013 National Health Interview Survey. Epilepsy Behav. 2016;54:47-9. doi: 10.1016/j.yebeh.2015.10.019
Begley C, Shegog R, Harding A, Goldsmith C, Hope O, Newmark M. Longitudinal feasibility of MINDSET: A clinic decision aid for epilepsy self-management. Epilepsy Behav. 2015;44C:143-150. doi: 10.1016/j.yebeh.2014.12.031
Brady TJ, Anderson LA, Kobau R. Chronic disease self-management support: public health perspectives. Front Public Health. 2015. 2:234. doi: 10.3389/fpubh.2014.00234
Caller TA, Secore KL, Ferguson RJ, Roth RM, Alexandre FP, Henegan PL, Harrington JJ, Jobst BC. Design and feasibility of a memory intervention with focus on self-management for cognitive impairment in epilepsy. Epilepsy Behav. 2015;44:192–194. doi: 10.1016/j.yebeh.2014.12.036
Cui W, Zack MM, Kobau R, Helmers SL. Health behaviors among people with epilepsy—Results from the 2010 National Health Interview Survey. Epilepsy Behav. 2015;44:121–126. doi: 10.1016/j.yebeh.2015.01.011
Escoffery C, Bamps YA, LaFrance W, et al. Development of the Adult Epilepsy Self-Management Measurement Instrument (AESMMI). Epilepsy Behav. 2015. 2015;50:172-183. doi: 10.1016/j.yebeh.2015.07.025
Escoffery C, Bamps YA, LaFrance W, et al. Factor analyses of an Adult Epilepsy Self-Management Measurement Instrument (AESMMI). Epilepsy Behav. 2015. ePub available before print. doi: 10.1016/j.yebeh.2015.07.026
Fraser RT, Johnson EK, Lashley S, et al. PACES in epilepsy: Results of a self-management randomized controlled trial. Epilepsia. 2015. doi:10.1111/epi.13052.
LaFrance W, Ranieri R, Bamps Y, et al. Comparison of common data elements from the Managing Epilepsy Well (MEW) Network integrated database and a well-characterized sample with nonepileptic seizures. Epilepsy Behav. 2015;45:136-41. doi:10.1016/j.yebeh.2015.02.021
Sahoo S, Zhang GQ, Bamps Y, et al. Managing Information Well: Towards an Ontology-driven Informatics Platform for Data Sharing and Secondary Use in Epilepsy Self-Management Research Centers. Health Informatics Journal. 2015, ePub available before print. doi: 10.1177/1460458215572924
Thompson, NJ, Patel A, Selwa LM, et al. The efficacy of Project UPLIFT for prevention: Distance delivery of mindfulness-based depression prevention. J Consult Clin Psych. 2015;83(2):304-13.
Caller TA, Secore K, Ferguson R, Roth R, Alexandre F, Jobst BC. A pilot study of a self-management intervention for cognitive impairment in epilepsy. Clinical Neurophys. 2014;125(11)e50. doi: 10.1016/j.clinph.2014.06.039
Shegog R, Bamps YA, Patel A, Kakacek J, Escoffery C, Johnson EK, Ilozumba UO. Managing Epilepsy Well: Emerging e-Tools for epilepsy self-management. Epilepsy Behav. 2013;29:133-140. doi: 10.1016/j.yebeh.2013.07.002
Johnson EK, Fraser RT, Miller JW, Temkin N, Barber J, Caylor L, Ciechanowski P. A comparison of epilepsy self-management needs: provider and patient perspectives. Epilepsy Behav. 2012;25(2):150-5. doi: 10.1016/j.yebeh.2012.07.020
Kobau R, Price P, Hawkins NA. News from the CDC: Translating epilepsy self-management research to practice. Transl Behav Med: Practice, Policy and Research. 2012;2(2):124–125. doi: 10.1007/s13142-012-0122-y
Walker ER, Bamps Y, Burdett A, DiIorio C, Rothkopf J. Social support for self-management behaviors among people with epilepsy: a content analysis of the WebEase program. Epilepsy Behav. 2012;23(3):285-90. doi: 10.1016/j.yebeh.2012.01.006
Fraser RT, Johnson EK, Miller JW, et al. Managing Epilepsy Well: a self-management needs assessment. Epilepsy Behav. 2011;20(2):291-298. 10.1016/j.yebeh.2010.10.010
Begley CE, Shegog R, Iyagba B, Chen V, Dubinsky S, Newmark M, Ojukwu N, Friedman D. Socioeconomic status and self-management in epilepsy: comparison of diverse clinical populations in Houston, TX. Epilepsy Behav. 2010;19(3):232-238. doi: 10.1016/j.yebeh.2010.08.020
Clark NM, Stoll S, Sweetman M, Youatt EJ, Derry R, Gorelick A. Fostering epilepsy self-management: the perspectives of professionals. Epilepsy Behav. 2010;19(3):255-263. doi: 10.1016/j.yebeh.2010.08.033
DiIorio C, Bamps Y, Edwards AL, Escoffery C, Thompson NJ, Begley CE, Shegog R, Clark NM, Selwa L, Stoll S, Fraser RT, Ciechanowski P, Johnson EK, Kobau R, Price PH. (2010) The Prevention Research Centers’ Managing Epilepsy Well Network. Epilepsy Behav. 2010;19(3):218-224. doi: 10.1016/j.yebeh.2010.07.027
Kobau R, Price P, Giles HW, Pennell P, Hargis E. Forward/editorial: Centers for Disease Control and Prevention Managing Epilepsy Well Network. Epilepsy Behav. 2010;19(3):216-217. 10.1016/j.yebeh.2010.08.016
DiIorio C, Escoffery C, Yeager KA, McCarty F, Henry TR, Koganti A, et al. WebEase: development of a Web-based epilepsy self-management intervention. Prev Chronic Dis 2009;6(1). html. Accessed October 10, 2014.
DiIorio C, Escoffery C, McCarty F, et al. Evaluation of WebEase: an epilepsy self-management website. Health Educ Res. 2009 24(2):185:97. doi: 10.1093/her/cyn012
Pramuka M, Hendrickson R, Zinski A, Van Cott AC. A psychosocial self-management program for epilepsy: A randomized pilot study in adults. Epilepsy Behav. 2007;11(4):533–545. Abstract. Accessed August 30, 2018.
Specific Populations
Begley C, Chong J, Shegog R, et al. MINDSET: Clinical feasibility of utilizing the revised epilepsy self-management tool for Spanish speaking patients. Epilepsy Behav. 2018;88:218-226. doi: 10.1016/j.yebeh.2018.09.021
Cui W, Kobau R, Zack MM, Helmers S. Marshalyn Yeargin-Allsopp M. Seizures in children and adolescents aged 6–17 years – United States, 2010–2014. MMWR. 2015;64(43):1209-14. html. Accessed January 14, 2016.
Hawley SR, Ablah E, Hesdorffer D, et al. Prevalence of pediatric epilepsy in low-income rural Midwestern counties. Epilepsy Behav. 2015;53:190-6. doi: 10.1016/j.yebeh.2015.09.014
Manacheril R, Faheem U, Labiner D, et al. Psychosocial Impact of Epilepsy in Older Adults. Healthcare. 2015;3(4):1271-83. doi: 10.3390/healthcare3041271.
Tang DH, Malone DC, Warholak TL, et al. Prevalence and incidence of epilepsy in an elderly and low-income population in the United States. J Clin Neurol. 2015;11(3):252-61. doi: dx.doi.org/10.3988/jcn.2015.11.3.252.
Wagner JL, Sample PL, Ferguson PL, Pickelsimer EE, Smith GM, Selassie AW. Impact of pediatric epilepsy: Voices from a focus group and implications for public policy change. Epilepsy Behav. 2009;16(1):161-165. doi: 10.1016/j.yebeh.2009.07.008
Bambara JK, Griffith HR, Martin RC, Faught E, Wadley VG, Marson DC. Medical decision-making abilities in older adults with chronic partial epilepsy. Epilepsy Behav. 2007;10(1): 63–68. Abstract. Accessed October 10, 2014.
Ciechanowski P, Wagner E, Schmaling K, et al. Community-integrated home-based depression treatment in older adults: a randomized controlled trial. JAMA. 2004;291(13):1569-77. Abstract. html. pdf [PDF 190K] Accessed October 10, 2014.
Martin R, Griffith HR, Faught E, et al. Cognitive functioning in community dwelling older adults with intractable partial epilepsy. Epilepsia. 2005:46(2):298-303. Abstract. Accessed October 10, 2014.
Martin R, Vogtle L, Gilliam F, Faught E. What are the concerns of older adults living with epilepsy? Epilepsy Behav. 2005:7:297–300. Abstract. Accessed October 10, 2014.
Martin R, Vogtle L, Gilliam F, Faught E. Health-related quality of life in seniors: What we know from clinical trials and directions for future research. Epilepsy Behav. 2003:4:626–634. Abstract. Accessed October 10, 2014.
Sirven JI, Lopez RA, Vazquez B, Van Haverbeke P. Que es la epilepsia? Attitudes and knowledge of epilepsy by Spanish-speaking adults in the United States. Epilepsy Behav. 2005;7:259–265. Abstract. Accessed October 10, 2014.
Traumatic Brain Injury
Ferguson PL, Smith GM, Wannamaker BB, Thurman DJ, Pickelsimer EE, Selassie AW. A population-based study of risk of epilepsy after hospitalization for traumatic brain injury. Epilepsia. 2010;51(5):891-8. doi: 10.1111/j.1528-1167.2009.02384.x
Wilson DA, Selassie AW. Risk of severe and repetitive traumatic brain injury in persons with epilepsy: A population-based case-control study. Epilepsy Behav. 2014;32:42-48. doi: 10.1016/j.yebeh.2013.12.035