References and Resources
Related links are organized into categories based on the information they provide or the type of organization they represent. Please note that some organizations provide information about a variety of topics related to infant hearing loss and early hearing detection and intervention (EHDI).
General Information
Cytomegalovirus
Information from American Academy of Family Physicians, a national, non-profit medical association of more than 88,000 members (family physicians, family practice residents, and medical students)
National Congenital CMV Disease Registry
A research program working to learn more about children born with symptoms of congenital CMV disease
CMV - Immunocompromised Host
Information from MedlinePlus, Medical Encyclopedia, an online service of the National Library of Medicine and the National Institutes of Health
CMV Materials for the Public
Information from the Congenital Cytomegalovirus Foundation, whose mission is to prevent birth defects resulting from congenital CMV infection
Podcasts and Health e-Card
Audio Podcasts
Staying Healthy When a Baby's on the Way
Cytomegalovirus, or CMV, is an infection that can cause serious birth defects in unborn babies. This podcast discusses the virus and suggests steps pregnant women can take which may reduce their risk of exposure to CMV.
Listen To This Podcast... (0:59)
Listen To This Podcast... (6:05)
Date Released: 1/31/2008
Put Your Hands Together
In this podcast, learn how to help stop the spread of infection and stay healthy. It's easy when you 'Put Your Hands Together.'
Listen To This Podcast... (3:48)
Date Released: 10/14/2008
Health-e-Card
CMV & Pregnancy
Send an eCard to a pregnant friend or family member.
Handwashing
Clean Hands Save Lives!
CDC handwashing guidelines
CDC Put Your Hands Together (video)
Video about proper handwashing
Guidelines for Hand Hygiene in Health-Care Settings
Recommendations of the Healthcare Infection Control Practices Advisory Committee and the HICPAC/SHEA/APIC/IDSA Hand Hygiene Task Force
MMWR Recommendations and Reports. October 25, 2002.51(RR16):1-44.
Hearing Loss
Cytomegalovirus: A Major Cause of Hearing Loss in Children
A May 2008 article about CMV and hearing loss published by the American Speech-Language-Hearing Association.
Report and Recommendations: NIDCD Workshop on Congenital Cytomegalovirus Infection and Hearing Loss
A publication from the National Institute on Deafness and Communication Disorders, the National Institutes of Health
Early Hearing Detection and Intervention Program
Information from the National Center on Birth Defects and Developmental Disabilities, CDC
Boys Town National Research Hospital
This site includes information about infant hearing loss, how the ear works, family issues, and some available intervention options.
Intellectual Disabilities
Intellectual Disability
Information about intellectual disabilities from CDC’s National Center on Birth Defects and Developmental Disabilities
Pregnancy
Preventing Infections during Pregnancy
CDC feature about steps women can take to help prevent infections during pregnancy
Cytomegalovirus Infection in Pregnancy
Fact sheet from the March of Dimes
Cytomegalovirus Infection
Questions and answers from the American Pregnancy Association
Professional Associations
American College of Obstetricians and Gynecologists
American Academy of Family Physicians
Family Support
Parent-to-Parent Support Network
Information from the National Congenital CMV Disease Registry Outreach Program
Brendan B. McGinnis Congenital CMV Foundation
Information from the Brendan B. McGinnis Congenital CMV Foundation, a non-profit organization dedicated to raising public awareness about congenital CMV
StopCMV
This network is composed of several families, friends and medical professionals personally affected by CMV and committed to public education efforts to prevent future cases of the virus.
HIV/AIDS
You Can Prevent CMV, A Guide for People with HIV Infection
From the National Center for HIV, STD, and TB Prevention, Divisions of HIV/AIDS Prevention
Selected Publications
Anderson B, Schulkin J, Ross DS, et al. Knowledge and practices of obstetricians and gynecologists regarding cytomegalovirus infection during pregnancy -- United States, 2007. MMWR. 2008. 57(3):65-8.
Cannon MJ, Schmid DS, Hyde TB. Review of cytomegalovirus seroprevalence and demographic characteristics associated with infection. Rev Med Virol. 2010 Jul;20(4):202-13.
Grosse SD, Dollard S, Ross DS, Cannon M. Newborn screening for congenital cytomegalovirus: Options for hospital-based and public health programs. J Clin Virol. 2009;46[Suppl 4]:S32-6. Epub 2009 Sep 26.
Hutto C, Ricks RE, Pass RF, et al. Epidemiologic notes and reports prevalence of cytomegalovirus excretion from children in five day-care centers -- Alabama. MMWR. 1985. 34(4);49-51.
Rahav G, Gabbay R, Ornoy A, et al. Primary versus nonprimary cytomegalovirus infection during pregnancy, Israel. Emerg Infect Dis. 2007;13(11):1791-3.
Rosenthal LS, Fowler KB, Boppana SB, Britt WJ, Pass RF, Schmid SD, Stagno S, Cannon MJ. Cytomegalovirus shedding and delayed sensorineural hearing loss: results from longitudinal follow-up of children with congenital infection. Pediatr Infect Dis J. 2009;28:515-20.
Ross DS, Rasmussen SA, Cannon MJ, Anderson B, Kilker K, Tumpey A, Schulkin J, Jones JL. Obstetrician-gynecologists’ knowledge, attitudes, and practices regarding prevention of infections in pregnancy. J Womens Health. 2009;18:1187-93.
Staras SAS, Flanders WD, Dollard SC, Pass RF, McGowan Jr JE, Cannon MJ. Cytomegalovirus seroprevalence and childhood sources of infection: A population-based study among pre-adolescents in the United States. J Clin Virol. 2008;43: 266-71.
Staras SAS, Flanders WD, Dollard SC, Pass RF, McGowan Jr JE, Cannon MJ. Influence of sexual activity on cytomegalovirus seroprevalence in the United States, 1988-1994. Sex Trans Dis. 2008;35:472-9.
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