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References and Resources

Related links are organized into categories based on the information they provide or the type of organization they represent. Please note that some organizations provide information about a variety of topics related to infant hearing loss and early hearing detection and intervention (EHDI).

General Information

Cytomegalovirus
Information from American Academy of Family Physicians, a national, non-profit medical association of more than 88,000 members (family physicians, family practice residents, and medical students)

National Congenital CMV Disease Registry
A research program working to learn more about children born with symptoms of congenital CMV disease

CMV - Immunocompromised Host
Information from MedlinePlus, Medical Encyclopedia, an online service of the National Library of Medicine and the National Institutes of Health

CMV Materials for the Public
Information from the Congenital Cytomegalovirus Foundation, whose mission is to prevent birth defects resulting from congenital CMV infection

Podcasts and Health e-Card

Audio Podcasts

mmwr podcast

Staying Healthy When a Baby's on the Way

Cytomegalovirus, or CMV, is an infection that can cause serious birth defects in unborn babies. This podcast discusses the virus and suggests steps pregnant women can take which may reduce their risk of exposure to CMV.
Adobe Acrobat print-friendly PDF file Listen To This Podcast... (0:59)
Adobe Acrobat print-friendly PDF file Listen To This Podcast... (6:05)
Date Released: 1/31/2008


mmwr podcast

Put Your Hands Together

In this podcast, learn how to help stop the spread of infection and stay healthy. It's easy when you 'Put Your Hands Together.'
Adobe Acrobat print-friendly PDF file Listen To This Podcast... (3:48)
Date Released: 10/14/2008

Health-e-Card

mother holding baby

CMV & Pregnancy

Send an eCard to a pregnant friend or family member.


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Handwashing

Clean Hands Save Lives!
CDC handwashing guidelines

CDC Put Your Hands Together (video)
Video about proper handwashing

Guidelines for Hand Hygiene in Health-Care Settings
Recommendations of the Healthcare Infection Control Practices Advisory Committee and the HICPAC/SHEA/APIC/IDSA Hand Hygiene Task Force
MMWR Recommendations and Reports. October 25, 2002.51(RR16):1-44.

Hearing Loss

Cytomegalovirus: A Major Cause of Hearing Loss in Children
A May 2008 article about CMV and hearing loss published by the American Speech-Language-Hearing Association.

Report and Recommendations: NIDCD Workshop on Congenital Cytomegalovirus Infection and Hearing Loss
A publication from the National Institute on Deafness and Communication Disorders, the National Institutes of Health

Early Hearing Detection and Intervention Program
Information from the National Center on Birth Defects and Developmental Disabilities, CDC

Boys Town National Research Hospital
This site includes information about infant hearing loss, how the ear works, family issues, and some available intervention options.

Intellectual Disabilities

Intellectual Disability
Information about intellectual disabilities from CDC’s National Center on Birth Defects and Developmental Disabilities

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Pregnancy

Preventing Infections during Pregnancy
CDC feature about steps women can take to help prevent infections during pregnancy

Cytomegalovirus Infection in Pregnancy
Fact sheet from the March of Dimes

Cytomegalovirus Infection
Questions and answers from the American Pregnancy Association

Professional Associations

Family Support

Parent-to-Parent Support Network
Information from the National Congenital CMV Disease Registry Outreach Program

Brendan B. McGinnis Congenital CMV Foundation
Information from the Brendan B. McGinnis Congenital CMV Foundation, a non-profit organization dedicated to raising public awareness about congenital CMV

StopCMV
This network is composed of several families, friends and medical professionals personally affected by CMV and committed to public education efforts to prevent future cases of the virus.

HIV/AIDS

You Can Prevent CMV, A Guide for People with HIV Infection
From the National Center for HIV, STD, and TB Prevention, Divisions of HIV/AIDS Prevention

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Selected Publications

Anderson B, Schulkin J, Ross DS, et al. Knowledge and practices of obstetricians and gynecologists regarding cytomegalovirus infection during pregnancy -- United States, 2007. MMWR. 2008. 57(3):65-8.

Cannon MJ, Schmid DS, Hyde TB. Review of cytomegalovirus seroprevalence and demographic characteristics associated with infection. Rev Med Virol. 2010 Jul;20(4):202-13.

Grosse SD, Dollard S, Ross DS, Cannon M. Newborn screening for congenital cytomegalovirus: Options for hospital-based and public health programs. J Clin Virol. 2009;46[Suppl 4]:S32-6. Epub 2009 Sep 26.

Hutto C, Ricks RE, Pass RF, et al. Epidemiologic notes and reports prevalence of cytomegalovirus excretion from children in five day-care centers -- Alabama. MMWR. 1985. 34(4);49-51.

Rahav G, Gabbay R, Ornoy A, et al. Primary versus nonprimary cytomegalovirus infection during pregnancy, Israel. Emerg Infect Dis. 2007;13(11):1791-3.

Rosenthal LS, Fowler KB, Boppana SB, Britt WJ, Pass RF, Schmid SD, Stagno S, Cannon MJ. Cytomegalovirus shedding and delayed sensorineural hearing loss: results from longitudinal follow-up of children with congenital infection. Pediatr Infect Dis J. 2009;28:515-20.

Ross DS, Rasmussen SA, Cannon MJ, Anderson B, Kilker K, Tumpey A, Schulkin J, Jones JL. Obstetrician-gynecologists’ knowledge, attitudes, and practices regarding prevention of infections in pregnancy. J Womens Health. 2009;18:1187-93.

Staras SAS, Flanders WD, Dollard SC, Pass RF, McGowan Jr JE, Cannon MJ. Cytomegalovirus seroprevalence and childhood sources of infection: A population-based study among pre-adolescents in the United States. J Clin Virol. 2008;43: 266-71.

Staras SAS, Flanders WD, Dollard SC, Pass RF, McGowan Jr JE, Cannon MJ. Influence of sexual activity on cytomegalovirus seroprevalence in the United States, 1988-1994. Sex Trans Dis. 2008;35:472-9.

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