Resources for Parents
Early Hearing Detection and InterventionInformation from the National Center on Birth Defects and Developmental Disabilities, CDC.
Intellectual Disability [2 pages]
Information about intellectual disabilities from CDC’s National Center on Birth Defects and Developmental Disabilities.
National Cytomegalovirus Registry for Pregnant WomenThe purpose of National Cytomegalovirus Registry for Pregnant Women is to develop a database of pregnant women in the United States who develop a congenital infection during pregnancy.
Parent-to-Parent Support Network
The National Congenital CMV Disease Registry assists nearly 600 families affected by CMV by providing a way to exchange information and by offering help and support to one another. When you join or update your profile, we will send you the current parent list.
National CMV FoundationA foundation with the mission is to increase awareness of CMV, provide information to help prevent and eliminate CMV, and become an advocate for those who are affected by congenital CMV.
Congenital Cytomegalovirus Foundation – A non-profit organization dedicated to raising public awareness about congenital CMV. Selected Publications
American Academy of Pediatrics. Cytomegalovirus Infection. In: Kimberlin DW, Brady MT, Jackson MA, Long SS, eds.
American Academy of Pediatrics; 2015; 317-322 Red Book ®: 2015 Report Of The Committee on Infectious Diseases. Cannon, M. J., Schmid, D. S., & Hyde, T. B. (2010).
Review of cytomegalovirus seroprevalence and demographic characteristics associated with infection. Rev Med Virol, 20(4), 202-213. Enders, G., Daiminger, A., Bader, U., Exler, S., & Enders, M. (2011).
Intrauterine transmission and clinical outcome of 248 pregnancies with primary cytomegalovirus infection in relation to gestational age. J Clin Virol, 52(3), 244-246. Grosse, S. D., Dollard, S., Ross, D. S., & Cannon, M. (2009).
Newborn screening for congenital cytomegalovirus: Options for hospital-based and public health programs. J Clin Virol, 46 Suppl 4, S32-36. Kimberlin, D. W., Jester, P. M., Sanchez, P. J., Ahmed, A., Arav-Boger, R., Michaels, M. G., et al. (2015).
Valganciclovir for symptomatic congenital cytomegalovirus disease. N Engl J Med, 372(10), 933-943. Krause, P. R., Bialek, S. R., Boppana, S. B., Griffiths, P. D., Laughlin, C. A., Ljungman, P., et al. (2013).
Priorities for CMV vaccine development. Vaccine, 32(1), 4-10. Kurath, S., Halwachs-Baumann, G., Muller, W., & Resch, B. (2010).
Transmission of cytomegalovirus via breast milk to the prematurely born infant: a systematic review. Clin Microbiol Infect, 16(8), 1172-1178. Practice bulletin no.
151: Cytomegalovirus, parvovirus B19, varicella zoster, and toxoplasmosis in pregnancy. (2015). Obstetrics & Gynecology, 125(6), 1510-1525. Revello, M. G., Tibaldi, C., Masuelli, G., Frisina, V., Sacchi, A., Furione, M., et al. (2015).
Prevention of Primary Cytomegalovirus Infection in Pregnancy. EBioMedicine, 2(9), 1205-1210. Ross, D. S., & Fowler, K. B. (2008).
Cytomegalovirus: A Major Cause of Hearing Loss in Children. The ASHA Leader, 13(6), 14-17.
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June 17, 2016 Page last updated:
June 17, 2016 Content source: