References and Resources

Related links are organized into categories based on the information they provide or the type of organization they represent. Please note that some organizations provide information about a variety of topics related to infant hearing loss and early hearing detection and intervention (EHDI).

General Information

Podcasts and Health e-Card

Handwashing

• Clean Hands Save Lives!
  CDC handwashing guidelines
• CDC Put Your Hands Together (video)
  Video about proper handwashing
• Guidelines for Hand Hygiene in Health-Care Settings
  Recommendations of the Healthcare Infection Control Practices Advisory Committee and the HICPAC/SHEA/APIC/IDSA Hand Hygiene Task Force
  MMWR Recommendations and Reports. October 25, 2002.51(RR16):1-44.

Hearing Loss

• Cytomegalovirus: A Major Cause of Hearing Loss in Children
  A May 2008 article about CMV and hearing loss published by the American Speech-Language-Hearing Association.
• Report and Recommendations: NIDCD Workshop on Congenital Cytomegalovirus Infection and Hearing Loss
  A publication from the National Institute on Deafness and Communication Disorders, the National Institutes of Health
• Early Hearing Detection and Intervention Program
  Information from the National Center on Birth Defects and Developmental Disabilities, CDC
• Boys Town National Research Hospital
  This site includes information about infant hearing loss, how the ear works, family issues, and some available intervention options.

Intellectual Disabilities

Pregnancy

• Preventing Infections during Pregnancy
  CDC feature about steps women can take to help prevent infections during pregnancy
• Cytomegalovirus Infection in Pregnancy
  Fact sheet from the March of Dimes
• Cytomegalovirus Infection
  Questions and answers from the American Pregnancy Association

Professional Associations

• American College of Obstetricians and Gynecologists
• American Academy of Family Physicians
• American Academy of Pediatrics
• American Pregnancy Association

Family Support

• Parent-to-Parent Support Network
  Information from the National Congenital CMV Disease Registry Outreach Program
• Brendan B. McGinnis Congenital CMV Foundation
  Information from the Brendan B. McGinnis Congenital CMV Foundation, a non-profit organization dedicated to raising public awareness about congenital CMV
• StopCMV
  This network is composed of several families, friends and medical professionals personally affected by CMV and committed to public education efforts to prevent future cases of the virus.

HIV/AIDS

Selected Publications

• Anderson B, Schulkin J, Ross DS, et al. Knowledge and practices of obstetricians and gynecologists regarding cytomegalovirus infection during pregnancy -- United States, 2007. MMWR. 2008. 57(3):65-8.
• Cannon MJ, Schmid DS, Hyde TB. Review of cytomegalovirus seroprevalence and demographic characteristics associated with infection. Rev Med Virol. 2010 Jul;20(4):202-13.
• Grosse SD, Dollard S, Ross DS, Cannon M. Newborn screening for congenital cytomegalovirus: Options for hospital-based and public health programs. J Clin Virol. 2009;46[Suppl 4]:S32-6. Epub 2009 Sep 26.
• Hutto C, Ricks RE, Pass RF, et al. Epidemiologic notes and reports prevalence of cytomegalovirus excretion from children in five day-care centers -- Alabama. MMWR. 1985. 34(4);49-51.
• Rahav G, Gabbay R, Ornoy A, et al. Primary versus nonprimary cytomegalovirus infection during pregnancy, Israel. Emerg Infect Dis. 2007;13(11):1791-3.
• Rosenthal LS, Fowler KB, Boppana SB, Britt WJ, Pass RF, Schmid SD, Stagno S, Cannon MJ. Cytomegalovirus shedding and delayed sensorineural hearing loss: results from longitudinal follow-up of children with congenital infection. Pediatr Infect Dis J. 2009;28:515-20.
• Ross DS, Rasmussen SA, Cannon MJ, Anderson B, Kilker K, Tumpey A, Schulkin J, Jones JL. Obstetrician-gynecologists’ knowledge, attitudes, and practices regarding prevention of infections in pregnancy. J Womens Health. 2009;18:1187-93.
• Staras SAS, Flanders WD, Dollard SC, Pass RF, McGowan Jr JE, Cannon MJ. Cytomegalovirus seroprevalence and childhood sources of infection: A population-based study among pre-adolescents in the United States. J Clin Virol. 2008;43: 266-71.
• Staras SAS, Flanders WD, Dollard SC, Pass RF, McGowan Jr JE, Cannon MJ. Influence of sexual activity on cytomegalovirus seroprevalence in the United States, 1988-1994. Sex Trans Dis. 2008;35:472-9.