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References and Resources

Related links are organized into categories based on the information they provide or the type of organization they represent. Please note that some organizations provide information about a variety of topics related to infant hearing loss and early hearing detection and intervention (EHDI).

General Information

Information from American Academy of Family Physicians, a national, non-profit medical association of more than 88,000 members (family physicians, family practice residents, and medical students)

National Congenital CMV Disease Registry
A research program working to learn more about children born with symptoms of congenital CMV disease

CMV—Immunocompromised Host
Information from MedlinePlus, Medical Encyclopedia, an online service of the National Library of Medicine and the National Institutes of Health

CMV Materials for the Public
Information from the Congenital Cytomegalovirus Foundation, whose mission is to prevent birth defects resulting from congenital CMV infection

Podcasts and Health e-Card

Audio Podcasts

mmwr podcast

Staying Healthy When a Baby's on the Way
Cytomegalovirus, or CMV, is an infection that can cause serious birth defects. This podcast discusses the virus and suggests steps pregnant women can take which may reduce their risk of exposure to CMV.
Listen To This Podcast... (0:59)
Listen To This Podcast... (6:05)
Date Released: 1/31/2008

Put Your Hands Together podcast

Put Your Hands Together
In this podcast, learn how to help stop the spread of infection and stay healthy. It's easy when you 'Put Your Hands Together.'
Listen To This Podcast... (3:48)
Date Released: 10/14/2008


eCard: Pregnant? Worry less. Sleep more.

CMV & Pregnancy
Send an eCard to a pregnant friend or family member.

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Hearing Loss

Intellectual Disabilities

Intellectual Disability
Information about intellectual disabilities from CDC’s National Center on Birth Defects and Developmental Disabilities

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Professional Associations

Family Support

  • Parent-to-Parent Support Network
    Information from the National Congenital CMV Disease Registry Outreach Program
  • Brendan B. McGinnis Congenital CMV Foundation
    Information from the Brendan B. McGinnis Congenital CMV Foundation, a non-profit organization dedicated to raising public awareness about congenital CMV
  • StopCMV
    This network is composed of several families, friends and medical professionals personally affected by CMV and committed to public education efforts to prevent future cases of the virus.


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Selected Publications

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