Caregiving Resources

Find a nursing home, assisted living, or hospice; check your eligibility for benefits; get resources for long-distance caregiving; review legal issues; and find support for caregivers using this comprehensive list from USA.gov.

General Information About Caregivers and Caregiving

• Framing the Public Health of Caregiving (American Journal of Public Health)
• Family Caregivers in Cancer (National Cancer Institute)
• Who Is a Caregiver? (National Cancer Institute)
• Coping with Cancer: For Caregivers, Family, and Friends (National Cancer Institute)
• Caregivers (Medline Plus)
• Caregiving: A Public Health Priority (CDC)
• Caregivers (American Cancer Society)

Agencies and Organizations

• National Family Caregiver Support Program (Administration on Aging)
• Support for Caregivers (Medicare)
• Family Caregiver Alliance
• National Alliance for Caregiving
• National Family Caregivers Association

Helpful Resources for Caregivers

CDC

• Families with Special Needs: Caregiving Tips
• Caregiving Tips for Families of People with Disabilities
• Preventing Infections in Cancer Patients: Information for Patients and Caregivers
• Personal Preparedness for Older Adults and Their Caregivers
• Managing Stress

Healthfinder.gov

• Support a Loved One at the Doctor: Quick Tips
• Get Support If You Are a Caregiver

Administration on Aging

• 10 Warning Signs: An Older Loved One May Need Assistance [PDF-KB]
• Working Caregivers: Finding a Balance [PDF-72KB]
• Emergency Readiness for Older Adults and Caregivers [PDF-612KB]
• Caregiver Survival Tips [PDF-544KB]
• Family Caregivers and Driving Retirement: Tips for Planning Ahead [PDF-416KB]
• Family Caregivers and Transportation: A Few Survival Tips [PDF-497KB]

National Institute on Aging

• So Far Away: Twenty Questions and Answers About Long-Distance Caregiving

Food and Drug Administration

• Food Safety for People with Cancer

Other Organizations

• I Can Cope classes (American Cancer Society)
• For Advanced Cancer Caregivers (Canadian Cancer Society)
• Clinical Trials for Caregivers of Cancer Patients (ClinicalTrials.gov)
• Caregiver Stress Fact Sheet (Office on Women's Health)
• Caregiving Resource Center (AARP)
• Caregivers (Cancer Support Community)
• Caregiving (CancerCare)
• Caregivers Center (Caring4Cancer)

National Reports

• MetLife Study of Caregiving Costs to Working Caregivers: Double Jeopardy for Baby Boomers Caring for Their Parents [PDF-659KB] (June 2011)
• Valuing the Invaluable: The Economic Value of Family Caregiving, 2008 Update [PDF-90KB] (November 2008)
• Evercare Study of Family Caregivers—What They Spend, What They Sacrifice: The Personal Financial Toll of Caring for a Loved One [PDF-1.2MB] (November 2007)
• Evercare Study of Caregivers in Decline: A Close-up Look at the Health Risks of Caring for a Loved One [PDF-954KB] (September 2006)

Podcasts

• Supporting family caregivers (HHS Healthbeat)
• Protecting the Health of Family Caregivers (CDC) A podcast for public health and aging services professionals.
• Caregiving in Indian Country (CDC) A podcast for public health and aging services professionals.

Research

• Bevans M, Sternberg EM. Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. JAMA 2012;307(4):398–403.
• Silveira MJ, Given CW, Cease KB, Sikorskii A, Given B, Northouse LL, Piette JD. Cancer care partners: improving patients’ symptom management by engaging informal caregivers. BMC Palliative Care 2011;10:21.
• Mazanec SR, Daly BJ, Douglas SL, Lipson AR. Work productivity and health of informal caregivers of persons with advanced cancer. JAMA 2011;34(6):483–495.
• Mazanec SR, Daly BJ, Ferrell BR, Prince-Paul M. Lack of communication and control: experiences of distance caregivers of parents with advanced cancer Oncology Nursing Forum 2011;38(3):307–313.