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Surveillance of Primary Intracranial and Central Nervous System Tumors: Recommendations from the Brain Tumor Working Group
Preface

Surveillance of Primary  Intracranial and Central  Nervous System Tumors Preface Executive Summary Introduction Background Methods Results Discussion Recommendations References Tables Appendix A Appendix B Appendix C Appendix D

This report on Surveillance of Primary Intracranial and Central Nervous System Tumors was prepared for the National Coordinating Council for Cancer Surveillance (NCCCS) by an appointed Working Group of experts in brain tumor epidemiology and in cancer registration, and representatives of several public and private organizations involved in cancer surveillance in the United States. The Working Group described the clinical and epidemiologic significance of benign and malignant intracranial and central nervous system (CNS) tumors; reviewed the current status of nonmalignant brain tumor surveillance among cancer registries in the United States; analyzed data for brain and other CNS tumors, as well as non-CNS intracranial tumors; and, assessed the feasibility of routine collection of data for nonmalignant brain tumors.

Based on its review, analysis, and assessment, the Working Group prepared a report with recommendations for the NCCCS regarding data collection of all primary intracranial and CNS tumors (see Executive Summary). The NCCCS discussed the report and recommendations at its September 9, 1998 meeting. The Council voted to accept two recommendations of the Working Group: (1) to derive a standard definition for all primary intracranial and CNS tumors and (2) to develop a standard site and histology definition for tabulating and estimating rates of these tumors. The NCCCS deferred further consideration and action on the two remaining Working Group recommendations.

National Coordinating Council for Cancer Surveillance
September 1998