NPCR-AERRO Central Cancer Registry Workgroup
Purpose and Goals
The Central Cancer Registry (CCR) Workgroup was formed after the Strategic Assessment and Modeling Session (SAMS) held in Atlanta, Georgia, in March 2006. Regional and state registries are the main participants.
- Requirements Findings for Central Cancer Registry SAMS, March 2006 [PDF-249KB]
- Requirements Findings for Central Cancer Registry SAMS, October 2006 [PDF-129KB]
The workgroup consists of participants from the March and October 2006 SAMS. The purpose of the workgroup is to—
- Develop the CCR module of the NPCR-AERRO model.
- Create a best practice use case for each cancer registry function identified at the SAMS.
- Review and revise the diagrams.
- Develop guidelines and recommendations.
- Help develop an implementation strategy.
The workgroup meets regularly to further NPCR-AERRO central cancer registry activities.
Activities and Timeline
The workgroup is reviewing and revising diagrams, developing guidelines and recommendations for central registries to use electronic reporting and automation, and collaborating on the development of an implementation strategy for electronic reporting. Below is a task list and work products that represent workgroup activities. The task list is updated as deliverables are finalized.
Modeling
| Use Case | Task | Status | Release Date |
|---|---|---|---|
| 1.1 | Approve a Pathology Laboratory for Electronic Reporting Use Case | Complete | |
| 1.2 | Prepare and Transmit Event Report | Complete | August 2009 |
| 1.3 | Receive Batch File | Complete | October 2007 |
| 1.4 | Validate Event Report | Complete | October 2007 |
| 1.5 | Perform Patient Linkage | Complete | |
| 1.6 | Perform Tumor Linkage | Defer to NAACCR Tumor Linkage Workgroup | None |
| 1.7 | Perform Consolidation | Defer to NAACCR Data Item Workgroup | None |
| 2.1 | Perform Casefinding Audits | Complete | August 2009 |
| 2.2 | Perform Quality Assurance / Quality Improvement | In progress | Spring 2010 (estimated) |
| 2.3 | Perform External Linkage to Improve Data | In progress | Spring 2010 (estimated) |
| 2.4 | Conduct Death Clearance | Defer to NAACCR Death Clearance Workgroup | None |
| 2.5 | Conduct Active Follow-up | Defer | None |
| 3.1 | Perform Interstate Data Exchange | Defer to NAACCR Confidentiality Committee | None |
| 4.1 | Respond to Calls for Data | Defer to Agency Publishing Call for Data | None |
| 5.1 | Provide Data for Use by Others | Assigned to NPCR-AERRO Cancer Control and Data Use Workgroup | Fall 2010 (estimated) |
| 5.2 | Conduct Linkage for Research | Defer | None |
| 5.3 | Conduct Research and Analysis | Assigned to NPCR-AERRO Cancer Control and Data Use Workgroup | Fall 2010 (estimated) |
| 5.4 | Perform Rapid Case Ascertainment | Defer to NAACCR IT Committee | None |
| 6.1 | Conduct Education and Training | Assigned to NPCR-AERRO ePath Workgroup | Spring 2010 (estimated) |
| 6.2 | Handle Security | No use case | None |
| 6.3 | Conduct Education and Training | No use case | None |
Analysis and Design
Future activities include—
- Define a list of reports to be submitted by each data source and a submission timeline for each.
- Define a standard for naming files of event reports from data sources.
- Define a format for transmitting the Medical Record Disease Index electronically.
Contact Us:
- Centers for Disease Control and Prevention
Division of Cancer Prevention and Control
4770 Buford Hwy NE
MS K-64
Atlanta, GA 30341 - 800-CDC-INFO
(800-232-4636)
TTY: (888) 232-6348
8am–8pm ET
Monday–Friday
Closed on Holidays - cdcinfo@cdc.gov
