NPCR-AERRO Central Cancer Registry Workgroup
Purpose and Goals
The Central Cancer Registry (CCR) Workgroup was formed after the Strategic Assessment and Modeling Session (SAMS) held in Atlanta, Georgia, in March 2006. Regional and state registries were the main participants.
- Requirements Findings for Central Cancer Registry SAMS, March 2006 [PDF-249KB]
- Requirements Findings for Central Cancer Registry SAMS, October 2006 [PDF-129KB]
The workgroup consisted of participants from the March and October 2006 SAMS. The purpose of the workgroup was to—
- Develop the CCR module of the NPCR-AERRO model.
- Create a best practice use case for each cancer registry function identified at the SAMS.
- Review and revise the diagrams.
- Develop guidelines and recommendations.
- Help develop an implementation strategy.
The workgroup met regularly to further the NPCR-AERRO central cancer registry activities.
Activities and Timeline
The workgroup reviewed and revised diagrams, developed guidelines and recommendations for central registries to use electronic reporting and automation processes, and collaborated on the development of an implementation strategy for electronic reporting. Below is a list of completed products that represent workgroup activities.
|Use Case||Task||Status||Release Date|
|1.1||Approve a Pathology Laboratory for Electronic Reporting Use Case||Complete||December 2011|
|1.2||Prepare and Transmit Event Report||Complete||August 2009|
|1.3||Receive Batch File||Complete||October 2007|
|1.4||Validate Event Report||Complete||October 2007|
|1.5||Perform Patient Linkage||Complete||December 2011|
|1.6||Perform Tumor Linkage||Defer to NAACCR Tumor Linkage Workgroup||None|
|1.7||Perform Consolidation||Defer to NAACCR Data Item Workgroup||None|
|2.1||Perform Casefinding Audits||Complete||August 2009|
|2.2||Perform Quality Assurance / Quality Improvement||Defer||None|
|2.3||Perform External Linkage to Improve Data||Defer to NAACCR Workgroup||None|
|2.4||Conduct Death Clearance||Defer to NAACCR Death Clearance Workgroup||None|
|2.5||Conduct Active Follow-up||Defer||None|
|3.1||Perform Interstate Data Exchange||Defer to NAACCR Confidentiality Committee||None|
|4.1||Respond to Calls for Data||Defer to Agency Publishing Call for Data||None|
|5.1||Provide Data for Use by Others||Defer||None|
|5.2||Conduct Linkage for Research||Defer||None|
|5.3||Conduct Research and Analysis||Defer||None|
|5.4||Perform Rapid Case Ascertainment||Defer to NAACCR IT Committee||None|
|6.1||Conduct Education and Training||No use case||None|
|6.2||Handle Security||No use case||None|