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NPCR-AERRO Cancer Control and Data Use Workgroup

Purpose and Goals

The NPCR-AERRO Cancer Control and Data Use (CC&DU) Workgroup evaluates how electronic reporting of cancer data and adoption of the Electronic Health Record (EHR) can impact use of cancer surveillance data, such as improved timeliness and data quality for better trend analysis.

The CC&DU workgroup convened its first meeting in October, 2007. NPCR, state central cancer registry programs, and state comprehensive cancer control programs are the main participants. Additional stakeholders are added as needed throughout the process. The workgroup meets regularly.

The purpose of the workgroup is to—

  • Model how cancer data are used for current and future needs.
  • Identify data sources and/or data elements not available previously.
  • Model feedback mechanisms between data use and cancer surveillance.

Activities and Timeline


Activity Status Release Date
Develop a business use case diagram for cancer control and data use Complete March 2009
Classify current and potential users of cancer surveillance data Complete July 2008
Describe the benefits EHR can offer to cancer control Complete July 2008
Examine short- and long-term data needs such as types of data used, purpose of the data, how the data are used, data sources, and challenges to data collection and/or use Complete June 2009
Identify existing and new knowledge products (such as state profiles) that can further the use of cancer surveillance data and can be enhanced by electronic cancer data exchange Complete November 2008

Analysis and Design

Activity Status Release Date
Review data items currently available in the EHR, and identify other data items to be included based on data gaps In progress None
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