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Cancer > NPCR Home > Informatics > NPCR-AERRO


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U.S. Cancer Statistics

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Cancer Control and Data Use Workgroup

Hospital Operations Workgroup

Central Cancer Registry Workgroup

eHealth Initiatives

ePath Reporting Activities

Purpose and Goals

The NPCR-AERRO Cancer Control and Data Use (CC&DU) Workgroup evaluates how electronic reporting of cancer data and adoption of the Electronic Health Record (EHR) can impact use of cancer surveillance data, such as improved timeliness and data quality for better trend analysis.

The CC&DU workgroup convened its first meeting in October, 2007. NPCR, state central cancer registry programs, and state comprehensive cancer control programs are the main participants. Additional stakeholders are added as needed throughout the process. The workgroup meets regularly.

The purpose of the workgroup is to—

Model how cancer data are used for current and future needs.
Identify data sources and/or data elements not available previously.
Model feedback mechanisms between data use and cancer surveillance.

Activities and Timeline

Modeling

Activity	Status	Estimated Release Date
Develop a business use case diagram for cancer control and data use	Complete	March 2009
Classify current and potential users of cancer surveillance data	Complete	July 2008
Describe the benefits EHR can offer to cancer control	Complete	July 2008
Examine short- and long-term data needs such as types of data used, purpose of the data, how the data are used, data sources, and challenges to data collection and/or use	Complete	June 2009
Identify existing and new knowledge products (such as state profiles) that can further the use of cancer surveillance data and can be enhanced by electronic cancer data exchange	Complete	November 2008
Develop use case and diagrams for Provide Data for Use by Others	Future development	To be decided
Develop use case and diagrams for Perform Research and Analysis	Future development	To be decided

Analysis and Design

Activity	Status	Estimated Completion Date
Review data items currently available in the EHR, and identify other data items to be included based on cancer data gaps	In progress	Summer 2009
Form an action plan to further potential uses of cancer surveillance data	Future development	Fall 2009
Recommend improvements to the format of the Electronic Health Record, Personal Health Record (PHR), and/or data collection and dissemination standards to aid in the use of cancer-related statistical data	Future development	Fall 2009
Identify pilot project opportunities to test feasibility of recommendations	Future development	Fall 2009