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Highlighted Articles

Key Findings: Sociodemographic Attributes and Spina Bifida Outcomes
Sociodemographic attributes and spina bifida outcomes
(Published: April 8, 2015)

Key Findings of Health Risk Behaviors among Young Adults with Spina Bifida in Arkansas.
Health Risk Behaviors Among Young Adults with Spina Bifida
(Published: January 3, 2013)

Key Findings: Hospital Use, Associated Costs, and Payer Status for Infants Born with Spina Bifida
About 18% of babies with spina bifida had more than three hospital stays initiated in their first year of life. The presence of other birth defects seemed to influence the length of stay in the hospital and hospital costs.
(Published: November 15, 2012)

National Spina Bifida Patient Registry
(Published: October 20, 2014)

Test Your Knowledge of Spina Bifida
If you have spina bifida, it’s important to get the facts so that you can make the best possible health care choices.
(Published: October 7, 2013)

Living with a Birth Defect
Read about one family's experience with a birth defect, spina bifida.
(Published: January 15, 2013)

Spina Bifida: Nancy’s Story
Read about a nurse and mother whose son has spina bifida.
(Published: October 15, 2012)

Learn more about the National Spina Bifida Program
SCD affects an estimated 90,000 to 100,000 Americans. Learn the symptoms and how to stay healthy.
(Published: October 17, 2011)

Spina Bifida Prevalence
Pediatrics, the Journal of the American Academy of Pediatrics, has published a new CDC study: “Prevalence of Spina Bifida Among Children and Adolescents in 10 Regions in the United States.”
(Published: July 13, 2010)

Recent Articles

Publications * These CDC scientific articles are listed in order of date published, from 2007 to present.

The National Spina Bifida Patient Registry: Profile of a Large Cohort of Participants from the First 10 Clinics   
Journal of Pediatrics  October 30, 2014 (Epub ahead of print] Sawin K, Liu T, Ward E, Thibadeau J, Schechter M, Soe M, Walker W
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Characteristics and survival of end stage renal disease (ESRD) patients with spina bifida in the United States Renal Data System (USRDS)   
The Journal of Urology, August 25, 2014 Ouyang L, Bolen J, Valdez R, Joseph D, Baum MA, Thibadeau J
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The Natural History of Spina Bifida in Children Pilot Project: Research Protocol
JMIR Research Protocols,  January 25, 2013  Alriksson-Schmidt AI, Thibadeau JK, Swanson ME, Marcus D, Carris KL, Siffel C, Ward E.
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Testing the Feasibility of a National Spina Bifida Patient Registry Birth Defects Research (Part A)
Clinical and Molecular Teratology; November 2, 2012 (Epub ahead of print) Thibadeau JK, Ward EA, Soe MM, Liu T, Swanson M, Sawin KJ, Freeman KA, Castillo H, Rauen K, Schechter MS.
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Health Risk Behaviors Among Young Adults with Spina Bifida
Developmental Medicine and Child Neurology; 2012 Nov;54(11):1057-64 Soe MM, Swanson ME, Bolen JC, Thibadeau JK, Johnson N
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Care Coordination in the Spina Bifida Clinic Setting
Current Practice and Future Directions Journal of Pediatric Healthcare; 2012 Jan-Feb;26(1): 16-26.
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Spina Bifida: Health and Development Across the Life Course
Edited by Swanson ME, Dandler AD Pediatric Clinics of North America, August 2010, Volume 57
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Prevalence of Spina Bifida Among Children and Adolescents in 10 Regions in the United States
Pediatrics; July 12, 2010, (Epub ahead of print);
Shin M, Besser LM, Siffel C, Kucik JE, Shaw GM, Lu C, Correa A, and the Congenital Anomaly Multistate Prevalence and Survival Collaborative.
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Hospitalization for Urinary Tract Infections and the Quality of Preventive Health Care Received by People with Spina Bifida
Disability and Health Journal; 2009
Armour B., Ouyang L., Thibadeau J., Grosse S., Campbell V., Joseph D.
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Anencephaly and Spina Bifida among Hispanics: Maternal, Sociodemographic, and Acculturation Factors in the National Birth Defects Prevention Study
Birth Defects Research (Part A); Clinical and Molecular Teratology; 2009 July; 85(7):637-46
Canfield MA, Ramadhani TA, Shaw GM, Carmichael SL, Walker DK, Mosley BS, Royle MH, Olney RS.
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Public Health Projects for Preventing the Recurrence of Neural Tube Defects in the United States
Birth Defects Research (Part A); Clinical and Molecular Teratology; 2009; 85(11):935-8
Collins JS, et al.
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Trends in the Postfortification Prevalence of Spina Bifida and Anencephaly in the United States
Birth Defects Research (Part A); Clinical and Molecular Teratology; 2008; 82:527-532
Boulet SL, Yang QH, Mai C, Kirby RS, Collins JS, Robbins JM, Meyer R, Canfield MA, Mulinare J.
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Health Care Expenditures of Children and Adults with Spina Bifida in a Privately Insured U.S. Population
Birth Defects Research (Part A); Clinical and Molecular Teratology; 2007 Jul; 79(7):552-8
Ouyang L, Grosse SD, Armour BS, Waitzman NJ
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Additional Selected Articles

A Randomized Trial of Prenatal versus Postnatal Repair of Myelomeningocele
The New England Journal of Medicine; 2011 March 17; 364:993-1004 Adzick NS, et al
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All Articles

Search a database of articles that have been published by CDC authors within the National Center on Birth Defects and Developmental Disabilities from 1990 to present.