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Articles & Key Findings

Highlighted Articles

Key Findings: Sociodemographic Attributes and Spina Bifida Outcomes
Sociodemographic attributes and spina bifida outcomes
(Published: April 8, 2015)

Key Findings of Health Risk Behaviors among Young Adults with Spina Bifida in Arkansas.
Health Risk Behaviors Among Young Adults with Spina Bifida
(Published: January 3, 2013)

Key Findings: Hospital Use, Associated Costs, and Payer Status for Infants Born with Spina Bifida
About 18% of babies with spina bifida had more than three hospital stays initiated in their first year of life. The presence of other birth defects seemed to influence the length of stay in the hospital and hospital costs.
(Published: November 15, 2012)

Using Data to Help Babies Born with Spina Bifida
Learn how babies born with spina bifida are being protected.
(Published: October 17, 2016)

Test Your Knowledge of Spina Bifida
If you have spina bifida, it’s important to get the facts so that you can make the best possible health care choices.
(Published: October 5, 2015)

National Spina Bifida Patient Registry
(Published: October 20, 2014)

Living with a Birth Defect
Read about one family's experience with a birth defect, spina bifida.
(Published: January 15, 2013)

Spina Bifida: Nancy’s Story
Read about a nurse and mother whose son has spina bifida.
(Published: October 15, 2012)

A Randomized Trial of Prenatal versus Postnatal Repair of Myelomeningocele
The New England Journal of Medicine; 2011 March 17; 364:993-1004 Adzick NS, et al
[Read summary]

Scientific Articles

Publications * These CDC-authored scientific articles are listed in order of date published, from present to 2007.

Design and Methodological Considerations of the National Spina Bifida Patient Registry Urologic and Renal Protocol for the Newborn and Young Child.
Journal of Urology 2016 Jul 27.
Routh JC, Cheng EY, Austin JC, Baum MA, Gargollo PC, Grady RW, Herron AR, Kim SS, King SJ, Koh CJ, Paramsothy P, Raman L, Schechter MS, Smith KA, Tanaka ST, Thibadeau JK, Walker WO, Wallis MC, Wiener JS, Joseph DB.
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Factors associated with the timeliness of postnatal surgical repair of spina bifida
Child’s Nervous System 2016 May 14.
Radcliff E, Cassell CH, Laditka SB, Thibadeau JK, Correia J, Grosse SD, Kirby RS.
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Sociodemographic attributes and spina bifida outcomes
Pediatr. 2015;135(4):e957-e964.
Schechter MS, Liu T, Soe M, Swanson M, Ward E, Thibadeau J.
[Read full article] [Read key findings]

The national spina bifida patient registry: profile of a large cohort of participants from the first 10 clinics   
J Pediatr. 2015 Feb; 166(2):444-50.e1.
Sawin K, Liu T, Ward E, Thibadeau J, Schechter M, Soe M, Walker W.
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Characteristics and survival of end stage renal disease (ESRD) patients with spina bifida in the United States Renal Data System (USRDS)   
J Urol. 2015 Feb; 193(2):558-64.
Ouyang L, Bolen J, Valdez R, Joseph D, Baum MA, Thibadeau J.
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Updated estimates of neural tube defects prevented by mandatory folic Acid fortification - United States, 1995-2011.
MMWR Morb Mortal Wkly Rep. 2015 Jan; 64(1):1-5
Williams J, Mai CT, Mulinare J, Isenburg J, Flood TJ, Ethen M, Frohnert B, Kirby RS.
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Supplement use and other characteristics among pregnant women with a previous pregnancy affected by a neural tube defect - United States, 1997-2009.
MMWR Morb Mortal Wkly Rep. 2015 Jan; 64(1):6-9
Arth A, Tinker S, Moore C, Canfield M, Agopian A, Reefhuis J.
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The natural history of spina bifida in children pilot project: research protocol
JMIR Res Protoc. 2013 Jan; 2(1):e2.  
Alriksson-Schmidt AI, Thibadeau JK, Swanson ME, Marcus D, Carris KL, Siffel C, Ward E.
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Testing the feasibility of a national spina bifida patient registry 
Birth Defects Res A Clin Mol Teratol. 2013 Jan; 97(1)36-41.
Thibadeau JK, Ward EA, Soe MM, Liu T, Swanson M, Sawin KJ, Freeman KA, Castillo H, Rauen K, Schechter MS.
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Hospital use, associated costs, and payer status for infants born with spina bifida
Birth Defects Res A Clin Mol Teratol. 2012 Dec;94(12):1044-53.
Radcliff E, Cassell CH, Tanner JP, Kirby RS, Watkins S, Correia J, Peterson C, Grosse SD.
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Prevalence of spina bifida among children and adolescents in 10 regions in the United States
Pediatrics; 2010; doi: 10.1542/peds.2009-2084
Shin M, Besser LM, Siffel C, Kucik JE, Shaw GM, Lu C, Correa A, and the Congenital Anomaly Multistate Prevalence and Survival Collaborative.
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