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| Discussion Matrix |
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Current Activities
Areas for Consideration
Participant Suggested Priorities
Other Participant Suggestions
Cross-cutting issues and observations arising from a discussion of
co-morbidities
Current Activities
(Note: Some of these activities are currently supported
by the CDC.) |
Focus Area 1. Expanding the reach for prevention
services |
Focus Area 2. Increasing opportunities for diagnosing
and treating HIV |
Focus Area 3. Developing new, effective prevention
interventions |
Focus Area 4. Mobilizing broader community action |
| Outreach (HERR, after-school programs) |
Mass testing events, and church community and college
testing |
Sisters Informing Sisters on the Topic of AIDS (SISTA)
modifications to educate both HIV-infected and HIV-negative |
6-week educational series about HIV for newly diagnosed
African American women |
| Social support services (i.e. housing, food,
transportation) |
Mass media communications |
SISTA modifications for commercial sex workers and
incarcerated women |
Prenatal care activities |
| Testing, treatment, and care (accessibility and
availability) |
Observance days |
Call-in roundtable discussions |
Why Women Cry Conference |
| Support groups (tailoring to population) |
Seeking political advocacy |
National program focusing on men talking to women ("I
take responsibility for the women in my life") |
Encourage Women Living with HIV to provide HIV info to
incarcerated women |
| Partner services |
Ryan White Title 4 |
UCHAPS social marketing campaign
Social Network Model |
Diverse funders supporting HIV Prevention for African
American women |
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Normalized testing for pregnant women |
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Reaching Out Sisters Educating Sisters (ROSES) |
| Rapid testing |
Celebrating Your Tomorrows |
| Connected testing with other STDs |
Faith-Based Health Day
The Living Room, The Bedroom and The Den |
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| Areas for Consideration |
Focus Area 1. Expanding the reach for prevention service |
Focus Area 2. Increasing opportunities for diagnosing
and treating HIV |
Focus Area 3. Developing new, effective prevention
interventions |
Focus Area 4. Mobilizing broader community action |
| Redefine risk (i.e., individual vs. structural, alternative construction, cultural competence) |
Reinstitutionalize peer health advocacy and support
programs for women |
Seek input from the target audience |
Develop new HIV prevention curriculum for grade schools |
| Involve youth and create more opportunities for meaningful input to improve communication re: HIV risk "Knowledge does
not equal behavior change." |
Check to determine if states are supportive in
preventing and treating HIV, and develop report card on various
indicators; encourage national health care |
Conduct qualitative studies |
Create new HIV prevention messages for African American
women |
| Improve understanding of male partner behavior |
Expedite data collection and dissemination |
Connect issues outside of HIV that affect HIV |
Create programs that include gender risk awareness for
African American women |
| Broaden discussions about risk and sex |
Prison testing and support |
Structural and behavioral interventions |
Educational classes to help parents talk to kids about
sex |
| Assess resilience |
Preventive education and support of young people |
Kaffe Klatsch discussions
Positive messages ("Protect yourself, respect yourself") |
Activities focusing on young girls |
| Interventions aimed at mixed gender |
Offer HIV testing when women come for Pap tests; test
new babies for HIV; emergency room testing |
Mental health in the Black community |
Research on female condoms and microbicides |
| Comprehensive human growth and development for girls |
Offer mental health services and therapy for women who
are newly HIV-infected |
Recognize relationships |
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| Reduce stigma to improve perception of risk |
Educate providers on importance of HIV testing |
Healthy discussions around sexuality |
| Integrate HIV prevention in all women service
organizations |
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Intervention that helps men and women discuss sexuality |
| Address structural risk factors in Requests for
Applications (RFAs) |
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| Involve faith communities |
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| Participant Suggested Priorities |
Focus Area 1. Expanding the reach for prevention
services |
Focus Area 2. Increasing opportunities for diagnosing
and treating HIV |
Focus Area 3. Developing new, effective prevention
interventions |
Focus Area 4. Mobilizing broader community action |
| Sustainability of funds |
Testing events for young people; finding HIV-infected
people and those at highest risk |
Identifying what is driving the behavior (Biggest fear
is imminent death) |
Linking HIV prevention services to mental health
and substance abuse |
| Redefining risk for HIV |
Redefining "high risk" |
Providers offering insight, entry into the community |
Expanding HIV prevention messages to African American
women |
| Tailoring outreach services |
Designing a new framework for delivering messages about
risk, without stigma on source of infection |
Identifying population to be reached
Identifying the intervention. |
Diversifying resources to support new activities |
| Increasing youth involvement/church programs |
Increasing awareness of psychological risk factors |
Taking harm reduction approach |
Creating more sustainable funding |
| Increasing understanding of urban vs. rural implications
for services |
Making treatment attractive |
Professionally analyzing community-based data already
being collected |
Mobilizing women living w/HIV to teach other women |
| Community-based organization (CBO) partnership and
evaluation capacity |
Involving HIV-infected people in decisions |
Community-based providers include CBOs, elected
officials, ministers, other gatekeepers. |
Flexible funding with more integrative approach |
| Dissemination of lessons learned |
Increasing awareness of children with AIDS who are now
in college |
Responding to social isolation, protect anonymity; still
give women an opportunity to talk. |
Targeting new money from new partners |
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Educating people to ask for testing |
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| Substance abuse treatment |
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| Other Participant Suggestions |
Focus Area 1. Expanding the reach for prevention
services |
Focus Area 2. Increasing opportunities for diagnosing
and treating HIV |
Focus Area 3. Developing new, effective prevention
interventions |
Focus Area 4. Mobilizing broader community action |
| Sustain funds to ensure level of service |
Ensure funding is proportionate to need |
Support community-based organizations |
Design Interventions to support prevention messages that
work after 5pm |
| Conduct research to redefine risks (structural factors, "alternative construction," African
American women are not monolithic, partner behavior) |
Conduct needs assessment to look at what has been done
and what needs to be addressed |
Develop online registry of community-based organization
interventions that are known to work |
Recognize impact of Class Issues on African American
Women |
| Increase comprehensive youth involvement in design and
delivery of services |
Ensure higher level accountability |
Move beyond behavioral interventions – Diffuse Effective
Structural Interventions (DESI) |
Create HIV prevention curricula for diverse groups |
| Conduct research to increase understanding of urban vs.
rural implications for prevention services (community norms) |
Improve AIDS education in school, including prevention
and treatment |
Develop tools that can be used in different environments
and locations to get good, rich data around behaviors and interventions |
Include the needs of substance users and street workers |
| Assess individual level resilience ("How do some youth make it out [i.e., not get
infected?]") |
Educate providers that STI testing should be integrated
into total care |
Educate healthcare providers
Develop national, wholesale, widespread marketing
program
Build capacity to increase acceptance of good homegrown
interventions |
Reevaluate the needs of women who have sex with women
and lesbians |
| Support locally tailored outreach services |
Address structural barriers —transportation, childcare,
etc. |
Community involvement from beginning to end, equal
partners drive research questions |
Provide funding without taking money from existing
programs |
| Develop CBO evaluation capacity to improve reporting of
successes and RFA development |
Develop new HIV tests — surgical swabs, dental testing,
etc. |
Develop comprehensive systematic research agenda for and
about Black women |
Recognize need for cross-community interventions |
| Develop national campaign for women and girls |
Ensure compassionate care for marginalized black women |
Identify African American researchers who have perhaps
not been heard |
Support programs that do not have a direct focus on HIV
but can effect reduction of risk. |
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Cross-cutting
issues and observations arising from a discussion of co-morbidities |
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Participant Issues |
We seem to be attacking things once and awhile. We get the
funding for injection drug users and the numbers for injection
drug users went down quite a bit and then we ignored it. Trauma in African American women’s lives. Just by being a
survivor puts me at high risk. We don’t talk about most of the
things that put us at risk for HIV.
What is secrecy and why the secret? We were told you don’t
share your information with other people, so we don’t discuss
that.
Shame, stigma and some level of guilt.
With co-morbidities don’t forget about young people, young
women whose numbers of STDs are significantly higher than other
races. Why are young women not getting screened and treated for
different sexually transmitted infections?
Younger women playing out sexual experiences. We talk about a
lot of reasons why we have sex. How do you decide who you’re
going to have sex with or how to select a partner. And in
today’s society you need a skill set different from older
generations. We have incarcerated men, drug use men, etc. How
are we preparing today’s women with these issues?
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Participant Observations |
No clear focus on nontraditional partners and how they would
be aligned back to the people who do the work. Money is given to health departments, and they’re supposed to
see about those funds. They have nurses and then nurses cannot
leave the building. The rates of HIV go up in those communities
and they say well we have money in those places. But we cannot
go out into the community. There needs to be something written
into the Requests for Proposals (RFPs) to mandate them to work
with CBOs. After 10 years of work with my local health
department, a woman finally came in and did screening. In 1
month, she tested 45 people and of the 45, 25 were infected with
an STD and they could have been out infecting others.
One of the barriers is we keep funding the same people who do
lousy jobs. There are some health departments that don’t do it
good and aren’t partnering. Is that really the best way to get
money to the people?
So now we’ve got the testing. Who’s paying the bill for the
medicine? We need health care for these disenfranchised folks.
Who is going to pay the bills?
There’s not many youth at the table. There’s a huge
separation between the seasoned workers and the younger ones
coming into the fold. There should be youth liaisons because
young black women connect better with other young black women.
Health departments differ in what they can do and what they
are responsible for, and it pays for the CBOs to know who is
doing what and we can only do so much. We have asked the states
to have an African American AIDS physician in the state. We
would like to do the job, but we get pieces of people who are
there but no support from the state.
Our media has a lot of impact on what is seen when it comes
to African Americans. We have the power to sanction the media
and control what they send out. We need to do something about
that. We’re not going to progress as long as we’re constantly in
battle with the media.
When we were working with young people we want people to wait
before having sex and they were listening. But that’s when we
had sex education in school. But we changed streams.
We all have our own values, views, etc. We’re all over the
continuum of knowledge.
The men here come from a different paradigm. We need to
acknowledge why we need men to talk from their roles and their
perspectives.
The human papillomavirus (HPV) message came out that got a
lot of response. How can we take a fresh approached to those
messages and couple them with HIV and herpes?
We have conferences for African American women that never get
recognized and they applaud themselves for media hits, but it’s
not the media hits that should be applauded but the people in
those programs who are generating that interest.
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