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CDC HomeHIV/AIDS > Topics > African Americans > Resources > HIV/AIDS and African American Women Consultation: Meeting Report

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Discussion Matrix
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Current Activities
Areas for Consideration
Participant Suggested Priorities
Other Participant Suggestions
Cross-cutting issues and observations arising from a discussion of co-morbidities

Current Activities
(Note: Some of these activities are currently supported by the CDC.)
Focus Area 1. Expanding the reach for prevention services Focus Area 2. Increasing opportunities for diagnosing and treating HIV Focus Area 3. Developing new, effective prevention interventions Focus Area 4. Mobilizing broader community action
Outreach (HERR, after-school programs) Mass testing events, and church community and college testing Sisters Informing Sisters on the Topic of AIDS (SISTA) modifications to educate both HIV-infected and HIV-negative 6-week educational series about HIV for newly diagnosed African American women
Social support services (i.e. housing, food, transportation) Mass media communications SISTA modifications for commercial sex workers and incarcerated women Prenatal care activities
Testing, treatment, and care (accessibility and availability) Observance days Call-in roundtable discussions Why Women Cry Conference
Support groups (tailoring to population) Seeking political advocacy National program focusing on men talking to women ("I take responsibility for the women in my life") Encourage Women Living with HIV to provide HIV info to incarcerated women
Partner services Ryan White Title 4 UCHAPS social marketing campaign
Social Network Model
Diverse funders supporting HIV Prevention for African American women
  Normalized testing for pregnant women   Reaching Out Sisters Educating Sisters (ROSES)
Rapid testing Celebrating Your Tomorrows
Connected testing with other STDs Faith-Based Health Day
The Living Room, The Bedroom and The Den

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Areas for Consideration Focus Area 1. Expanding the reach for prevention service Focus Area 2. Increasing opportunities for diagnosing and treating HIV Focus Area 3. Developing new, effective prevention interventions Focus Area 4. Mobilizing broader community action
Redefine risk (i.e., individual vs. structural, alternative construction, cultural competence) Reinstitutionalize peer health advocacy and support programs for women Seek input from the target audience Develop new HIV prevention curriculum for grade schools
Involve youth and create more opportunities for meaningful input to improve communication re: HIV risk "Knowledge does not equal behavior change." Check to determine if states are supportive in preventing and treating HIV, and develop report card on various indicators; encourage national health care Conduct qualitative studies Create new HIV prevention messages for African American women
Improve understanding of male partner behavior Expedite data collection and dissemination Connect issues outside of HIV that affect HIV Create programs that include gender risk awareness for African American women
Broaden discussions about risk and sex Prison testing and support Structural and behavioral interventions Educational classes to help parents talk to kids about sex
Assess resilience Preventive education and support of young people Kaffe Klatsch discussions
Positive messages ("Protect yourself, respect yourself")
Activities focusing on young girls
Interventions aimed at mixed gender Offer HIV testing when women come for Pap tests; test new babies for HIV; emergency room testing Mental health in the Black community Research on female condoms and microbicides
Comprehensive human growth and development for girls Offer mental health services and therapy for women who are newly HIV-infected Recognize relationships  
Reduce stigma to improve perception of risk Educate providers on importance of HIV testing Healthy discussions around sexuality
Integrate HIV prevention in all women service organizations   Intervention that helps men and women discuss sexuality
Address structural risk factors in Requests for Applications (RFAs)  

 

Involve faith communities

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Participant Suggested Priorities Focus Area 1. Expanding the reach for prevention services Focus Area 2. Increasing opportunities for diagnosing and treating HIV Focus Area 3. Developing new, effective prevention interventions Focus Area 4. Mobilizing broader community action
Sustainability of funds Testing events for young people; finding HIV-infected people and those at highest risk Identifying what is driving the behavior (Biggest fear is imminent death) Linking HIV prevention services to mental health and substance abuse
Redefining risk for HIV Redefining "high risk" Providers offering insight, entry into the community Expanding HIV prevention messages to African American women
Tailoring outreach services Designing a new framework for delivering messages about risk, without stigma on source of infection Identifying population to be reached
Identifying the intervention.
Diversifying resources to support new activities
Increasing youth involvement/church programs Increasing awareness of psychological risk factors Taking harm reduction approach Creating more sustainable funding
Increasing understanding of urban vs. rural implications for services Making treatment attractive Professionally analyzing community-based data already being collected Mobilizing women living w/HIV to teach other women
Community-based organization (CBO) partnership and evaluation capacity Involving HIV-infected people in decisions Community-based providers include CBOs, elected officials, ministers, other gatekeepers. Flexible funding with more integrative approach
Dissemination of lessons learned Increasing awareness of children with AIDS who are now in college Responding to social isolation, protect anonymity; still give women an opportunity to talk. Targeting new money from new partners
  Educating people to ask for testing  
Substance abuse treatment

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Other Participant Suggestions Focus Area 1. Expanding the reach for prevention services Focus Area 2. Increasing opportunities for diagnosing and treating HIV Focus Area 3. Developing new, effective prevention interventions Focus Area 4. Mobilizing broader community action
Sustain funds to ensure level of service Ensure funding is proportionate to need Support community-based organizations Design Interventions to support prevention messages that work after 5pm
Conduct research to redefine risks (structural factors, "alternative construction," African American women are not monolithic, partner behavior) Conduct needs assessment to look at what has been done and what needs to be addressed Develop online registry of community-based organization interventions that are known to work Recognize impact of Class Issues on African American Women
Increase comprehensive youth involvement in design and delivery of services Ensure higher level accountability Move beyond behavioral interventions – Diffuse Effective Structural Interventions (DESI) Create HIV prevention curricula for diverse groups
Conduct research to increase understanding of urban vs. rural implications for prevention services (community norms) Improve AIDS education in school, including prevention and treatment Develop tools that can be used in different environments and locations to get good, rich data around behaviors and interventions Include the needs of substance users and street workers
Assess individual level resilience ("How do some youth make it out [i.e., not get infected?]") Educate providers that STI testing should be integrated into total care Educate healthcare providers
Develop national, wholesale, widespread marketing program
Build capacity to increase acceptance of good homegrown interventions
Reevaluate the needs of women who have sex with women and lesbians
Support locally tailored outreach services Address structural barriers —transportation, childcare, etc. Community involvement from beginning to end, equal partners drive research questions Provide funding without taking money from existing programs
Develop CBO evaluation capacity to improve reporting of successes and RFA development Develop new HIV tests — surgical swabs, dental testing, etc. Develop comprehensive systematic research agenda for and about Black women Recognize need for cross-community interventions
Develop national campaign for women and girls Ensure compassionate care for marginalized black women Identify African American researchers who have perhaps not been heard Support programs that do not have a direct focus on HIV but can effect reduction of risk.

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  Cross-cutting issues and observations arising from a discussion of co-morbidities
Participant Issues We seem to be attacking things once and awhile. We get the funding for injection drug users and the numbers for injection drug users went down quite a bit and then we ignored it.

Trauma in African American women’s lives. Just by being a survivor puts me at high risk. We don’t talk about most of the things that put us at risk for HIV.

What is secrecy and why the secret? We were told you don’t share your information with other people, so we don’t discuss that.

Shame, stigma and some level of guilt.

With co-morbidities don’t forget about young people, young women whose numbers of STDs are significantly higher than other races. Why are young women not getting screened and treated for different sexually transmitted infections?

Younger women playing out sexual experiences. We talk about a lot of reasons why we have sex. How do you decide who you’re going to have sex with or how to select a partner. And in today’s society you need a skill set different from older generations. We have incarcerated men, drug use men, etc. How are we preparing today’s women with these issues?

Participant Observations No clear focus on nontraditional partners and how they would be aligned back to the people who do the work.

Money is given to health departments, and they’re supposed to see about those funds. They have nurses and then nurses cannot leave the building. The rates of HIV go up in those communities and they say well we have money in those places. But we cannot go out into the community. There needs to be something written into the Requests for Proposals (RFPs) to mandate them to work with CBOs. After 10 years of work with my local health department, a woman finally came in and did screening. In 1 month, she tested 45 people and of the 45, 25 were infected with an STD and they could have been out infecting others.

One of the barriers is we keep funding the same people who do lousy jobs. There are some health departments that don’t do it good and aren’t partnering. Is that really the best way to get money to the people?

So now we’ve got the testing. Who’s paying the bill for the medicine? We need health care for these disenfranchised folks. Who is going to pay the bills?

There’s not many youth at the table. There’s a huge separation between the seasoned workers and the younger ones coming into the fold. There should be youth liaisons because young black women connect better with other young black women.

Health departments differ in what they can do and what they are responsible for, and it pays for the CBOs to know who is doing what and we can only do so much. We have asked the states to have an African American AIDS physician in the state. We would like to do the job, but we get pieces of people who are there but no support from the state.

Our media has a lot of impact on what is seen when it comes to African Americans. We have the power to sanction the media and control what they send out. We need to do something about that. We’re not going to progress as long as we’re constantly in battle with the media.

When we were working with young people we want people to wait before having sex and they were listening. But that’s when we had sex education in school. But we changed streams.

We all have our own values, views, etc. We’re all over the continuum of knowledge.

The men here come from a different paradigm. We need to acknowledge why we need men to talk from their roles and their perspectives.

The human papillomavirus (HPV) message came out that got a lot of response. How can we take a fresh approached to those messages and couple them with HIV and herpes?

We have conferences for African American women that never get recognized and they applaud themselves for media hits, but it’s not the media hits that should be applauded but the people in those programs who are generating that interest.

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Last Modified: November 14, 2007
Last Reviewed: November 14, 2007
Content Source:
Divisions of HIV/AIDS Prevention
National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention

 

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